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- Liver Transplant Life and Complications Part 1
- Medical and Surgical Options Video Part 1
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Posts by category
- Category: Advocacy
- Reflecting On Our Journey & Preparing For Our Future
- International Alliance Update: February 2024
- Empowering Young Advocates Part 2:
- Empowering Young Advocates: How to Advocate for Yourself as a Child or Teenager with PFIC
- 6 Ways to Advocate for Yourself as a PFIC Patient or Parent – And Why It Matters
- Sophie’s Success Fundraising
- PFIC International Alliance in Action: A Special Trip to ESPGHAN!
- Today We Celebrate Rare Disease Day
- Project REACH Across the Globe
- Advocacy in Action – PGT-M Acceptance Through Experience
- Reflection: Takeaways from our Booth at the ESPGHAN Congress
- A Natural Advocate
- Advocacy – A Mothers Voice
- Julia
- The itch won…
- My PFIC 2 child, all grown up & speaking up
- Category: Blog
- Category: Events
- Category: Itch
- Category: Mental Health Support
- Category: News & Announcements
- Category: Patient Stories
- Category: Science & Research
- Category: Support & Resources
Products
- Limited Edition PFIC Itching For A Cure Women’s Tank Top
- Women’s V-Neck Awareness Day 2020 PFIC Network Logo Shirt
- Black PFIC Network Hooded Sweatshirt
- Black PFIC Network T-shirt
- Fundraising Swag Bag
- PFIC Awareness Wristband Bracelet
- Educational Brochure - Printed Version
- Educational Brochure - Digital Download
- 2021 PFIC Network T-shirt
- PFIC Network Square Sticker
- PFIC Network Logo Sticker Round
- PFIC Network Pen
- PFIC Keychain
- 2020 PFIC Awareness Day Onesie
- 2020 PFIC Awareness Day Youth/Toddler T-Shirt
- 2020 PFIC Awareness Day Logo T-shirt
- Talk to your Doctor Brochure
Testimonials
- Emily Knakmuhs, mother of Kennedie
- Jacqueline, 30yrs BRIC
- Sara Harris, mom of Alaia, PFIC 2
- A PFIC Mom from India
- Madison Selmani, PFIC patient
Families
- Inabiyah Pari
- Eva Wren's Story
- Smith Family
- Kennedie's Story
- Cedar's Story with PFIC 2
- Anna's Story with PFIC 2
- Sadia's Story with PFIC 2
- Eva Luna's Story with PFIC
- Cade's Ostomy Journey-A mother's Acceptance
- The diary of a PFIC mom from India
- Sophia's Story with BRIC - a long road to diagnosis
- Yolanda's Story with BRIC
- Armando's story with PFIC
Newsroom
- FDA Approval of LIVMARLI (maralixibat) for the treatment of cholestatic pruritus in PFIC
- Project REACH Across the Globe
- PFIC Scientific Conference: Wrap-Up and Next Steps
- Research Announcement: The PFIC Network Research Grant Program is Now Open
- Cincinnati Children’s Launches Research Center for Rare Liver Diseases
- CZI Awards $13 Million to Patient-Led Organizations Advancing Rare Disease Research
- Bespoke Gene Therapy Consortium to Fund Research into Improving Standardizing Methods for Preclinical Testing of Gene Therapies.
- FDA Approval of Bylvay (Odevixibat) for the treatment of Progressive Familial Intrahepatic Cholestasis
- European Commission Approval of Bylvay (Odevixibat) for the treatment of Progressive Familial Intrahepatic Cholestasis
- Rare and Complex Liver Transplant by Indian Surgeons, 9-month-old Baby From Iraq Gets a New Life
- Randi Rering, now 18, has battled and survived a rare liver disease and wants to help others
- 10-year-old girl becomes the face of hope for people living with rare liver disease
- Living with a rare disease: St. Catharines family finds support in advocacy network
- Boy’s rare disease causes constant itching, will harm his liver
- Local child fights rare genetic disorder, family working to raise awareness
- The First-Ever PFIC Network Family Conference will Bring Families Affected by the Disease Together This Week
- How One Rare Disease Organization Boosted Another
Volunteer
Network Library
- Genetics of PFIC: Current Status and Implications
- Systematic Review of Progressive Familial Intrahepatic Cholestasis
- Genotype Correlates with the Natural History of Severe Bile Salt Export Pump Deficiency
- Newer Approaches to the Management of Pruritus in Cholestatic Liver Disease
- Expanding etiology of progressive familial intrahepatic cholestasis
- Outcomes of Surgical Management of Familial Intrahepatic Cholestasis 1 and 2
- Bile Salt Export Pump-Reactive Antibodies Form a Polyclonal, Multi-Inhibitory Response in Antibody-Induced Bile Salt Export Pump Deficiency