Get Involved

Help us improve the lives of patients and families living with PFIC and PFIC related diseases.

Quick Opportunities:

Join the Patient RegistryShare Your StoryVisit the PFIC Connect ForumOrganize a Fundraiser

Consistent Engagement:

Become a Peer MentorVolunteer on a CommitteeJoin the International AllianceStart a Global Affiliate

Join the Patient Registry

Everyone’s participation is important. By participating in the self-report registry, you help speed up PFIC research, and make research more meaningful for patients.

Share Your Story

Your voice is your superpower.
Patient stories play an important role in many ways. By sharing your story, you can help patients and caregivers feel less alone, raise disease awareness, influence legislation, and even affect the way scientific research is conducted.

Visit the PFIC Connect Forum

Login to our forum to ask questions, share knowledge, and meet other members of the PFIC community.

Organize a Fundraiser

Raise money for PFIC research and community support programs by hosting your own fundraiser or participating in PFIC Awareness Day!

Become a Peer Mentor

Your journey with PFIC is a source of wisdom and hope. By becoming a Peer Mentor, you can help empower other patients, families and caregivers to feel ready to tackle the challenges of living with PFIC and related diseases

Volunteer on a Committee

Meet other PFIC families, share your unique perspective and help guide PFIC Network’s advocacy and scientific initiatives by joining one of our community-led advisory bodies: the Community Advisory Council or the IRRRC. 

Join the International Alliance

United, we are an unstoppable force. Work together with PFIC patients around the globe to find country-specific solutions for resource needs, patient support, policy issues, and research.

Start a Global Affiliate

Help organize and connect PFIC patients with resources in your country by starting an affiliate organization.