Your voice is your superpower. Patient stories play an important role in many ways. By sharing your story, you can help patients and caregivers feel less alone, raise disease awareness, influence legislation, and even affect the way scientific research is conducted.
Your journey with PFIC is a source of wisdom and hope. By becoming a Peer Mentor, you can help empower other patients, families and caregivers to feel ready to tackle the challenges of living with PFIC and related diseases
Meet other PFIC families, share your unique perspective and help guide PFIC Network’s advocacy and scientific initiatives by joining one of our community-led advisory bodies: the Community Advisory Council or the IRRRC.