The PFIC Network strives to increase awareness, improve care, and grow community support people living with Progressive Familial Intrahepatic Cholestasis (PFIC) and Benign Reccurrent Intrahepatic Cholestasis (BRIC) worldwide.
As Awareness efforts are increasing, members of the PFIC Community are stepping up to improve care and resources in their own communities throughout the world.
To amplify these efforts, the PFIC Network aims to collaborate with outstanding regional and local support groups, charities, and societies.
If you would like to start a support group, or lead a group that seeks to raise awareness in the medical and general communities, expand research efforts, and improve medical care in your country, learn more about becoming a PFIC Network Global Affiliate!
PFIC Network Global Affiliate Special Perks
- Special recognition of affiliation with the PFIC Network with special logo for use on your webpages and social media. If you prefer to create your own logo, we will use your design in materials created in collaboration.
- Statement of affiliation for use on your website, and/or other designated materials.
- Promotional materials and marketing assistance
- Branding Assistance including logo creation, business cards, templates for social media, emails and promotional materials.
- Listing with the pfic.org Global Support Contact Directory and quarterly mentions in the PFIC Network’s newsletter.
- Promotion and listing on the pfic.org event calendar and on social media (subject to approval) –please contact us about listing an event.
- Sponsored Invitation & Recognition at the annual PFIC Network Family Conference—and meeting for Affiliate officers and/or representatives.
- Opportunities to share affiliate news in the Network’s newsletter, on social media, etc.
- Discounts, gifts, and special invitations
- Official logo membership gear for the group leader.
- Collaboration in creating Awareness materials in own language, including Awareness Day Gear (t-shirts, logo gear, etc.)
- Discount of 20% off the registration price for up to two (2) authorized group representatives for PFIC Network conferences and events throughout the world.
- 25% discount off merchandise at conferences and in our online shop for up to two representatives.
- Quarterly Communication with PFIC Network leadership:
- Learn more about PFIC Network projects, initiatives, and news.
- Collaborate with other Affiliates on issues important to individual groups.
- Create new ways to increase global awareness, improve patient support, and advance research initiatives.
Alone we are Rare, Together we are Mighty. Together, we are #ItchingForACure.
Join the PFIC Network’s Affiliate Program.