PFIC Network Partners
Our work at PFIC Network would not be possible without the generous support of our many PFIC Network partners. From corporate sponsors to raffle donors to fellow advocacy organizations to individual donors, all of our partners play an important role in furthering our mission. If you would like to be a part of improving the lives of PFIC patients and families all over the world, please contact us!
Corporate Sponsors/Industry Partners
Mirum Pharma
Based in California
Developed the medication, Maralixibat, currently in phase 3 clinical trials for PFIC
Albireo Pharma
Based in Boston, MA
Developed the medication, Odevixibat, currently in phase 3 clinical trials for PFIC
PFIC Network Partnered Businesses
Miguel's Pizza
Miguel's Pizza restaurant first began in 1984 with the renovation of this historic 1940's store, serving good Italian style food in a friendly atmosphere. Centrally located in a scenic location across the street from Natural Bridge State park in the Red River Gorge area of Eastern Kentucky. It has become the "Gorge visitor hot spot"
Red River Rockhouse
An eclectic American cafe in Wolfe County, Kentucky. Serving locally sourced foods.
Red Oaks
Based in KY
Supports PFIC with their Climbing for a Cure Program
PFIC Network Supporting Businesses
JMD Embroidery
Based in Canada
Provides personalized care packages for patients via the PFIC Pals and Care Package Programs
Skybridge Station
Your one-stop shop in the Red River Gorge! 12 LOCAL beers on tap, gourmet hot dogs, locally sourced hamburgers, quesadillas, lodging, tourist info, and the home of KRAG!
Daniel Boone Coffee Shop
Fair trade, organic, regionally roasted coffee. We offer the best lattes in the gorge, fresh baked goods and much more! Also camp supplies and souvenirs
Welcome Home Brewery
Welcome Home Brewery, is a cozy, homey tap room and brewery in Parker, CO. We make all our beer on site, and offer a selection of rotating seasonal beers and flagship styles.
PFIC Awareness Day Raffle Donors
Positive Attraction Soaps
Based in KY
Provides custom hand made care packages for caregivers and patients
Lila Callie Photography
Based in KY
1 % of all proceeds goes to PFIC
Shop Dove & Finn
At Shop Dove and Finn, we create handmade, unique, and affordable clay jewelry and accessories. Shop with us!
Located in the Red River Gorge, Kentucky
Dreaming Creek Brewery
A craft brewery located in the heart of Daniel Boone's frontier.
Earth Shop
Share your love of the gorge with the Red River Gorge Earth Shop, celebrating the nature and beauty of eastern Kentucky with local-made souvenirs and goods! Located in The Gorge Underground
Revival Ridge Farm
Small scale, diverse vegetable and flower farm located in the heart of Red River Gorge. Intentionally grown with love and care, for people and planet.
West Sixth Brewing
A craft brewery & taproom located in a 140 year old bakery. West Sixth cans & distributes our award-winning beers through Kentucky and into Cincinnati, OH
Tiffany Nardico Photography
Tiffany Nardico is a local photographer capturing adventure around Red River Gorge, Kentucky.
Other Grants Received
Everylife Foundation
Dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures.
Global Genes
Empower patients, build communities & drive forward momentum for rare disease globally.
PFIC Network Professional Affiliations
Special thanks to our donors
John & Denise Flannagan
Friends & Family of Ellie Wong
Gabriella Farrell on behalf of Eva Bourton
Chris & Christy Peetz
Laureen & Ron Cooper
Sivaji Pasupuleti
The Hovey Family
The Matro Family: We Love You Cade Hovey!
BellaHenna
Clara Kebabian
Friends & Family of the Perez Family
Software Donors
We’ve run multiple surveys covering events , donor feedback, volunteer surveys – all for free. Thank you QuestionPro!