Global Affiliate Program

pfic network global affiliate logo with the text "a global community" underneath the logo


As PFIC awareness efforts are increasing, members of the PFIC community are stepping up to improve care and resources in countries throughout the world. 

If you have or would like to start a support group or charity that seeks to raise PFIC awareness, connect patients with resources and support, and expand research efforts in your country, learn more about becoming a PFIC Network Global Affiliate!

What is a Global Affiliate? 

A Global Affiliate is an informal support group or registered charity organized by PFIC patients and/or families. 

PFIC Network started the Global Affiliate program to empower patient leaders and improve connection points for international PFIC patients to 1) find support and resources and 2) raise awareness of country-specific challenges facing the PFIC community.

Affiliates are encouraged to learn about global resources available through PFIC Network and participate in the International Alliance (interpretation services provided upon request and availability). 

Affiliates are also encouraged to have a PFIC Facebook page, Whatsapp group, or other country-specific PFIC community communication channel.

Benefits of becoming a Global Affiliate

  • Official listing on the PFIC Network website in the Global Support Contact Directory
  • Qualification for a PFIC Network Affiliate Scholarship Visit the Scholarship page
  • Prioritization for PFIC Network’s Project REACH initiative. Visit the Project REACH page
  • Expanded opportunities for research participation 
  • Professional credibility 

PFIC Network Global Affiliate Special Perks

  • Special recognition of affiliation with the PFIC Network with a special logo for use on your webpages and social media. If you prefer to create your own logo, we will use your design in materials created in collaboration.
  • Statement of affiliation for use on your website, and/or other designated materials.
  • Promotional materials and marketing assistance
    • Branding Assistance including logo creation, business cards, templates for social media, emails and promotional materials.
    • Listing with the Global Support Contact Directory and quarterly mentions in the PFIC Network’s newsletter.
    • Promotion and listing on the event calendar and on social media (subject to approval) –please contact us about listing an event.
    • Sponsored Invitation & Recognition at the annual PFIC Network Family Conference—and meeting for Affiliate officers and/or representatives.
    • Opportunities to share affiliate news in the Network’s newsletter, on social media, etc.
  • Discounts, gifts, and special invitations
    • Official logo membership gear for the group leader.
    • Collaboration in creating Awareness materials in own language, including Awareness Day Gear (t-shirts, logo gear, etc.)
    • Discount of 20% off the registration price for up to two (2) authorized group representatives for PFIC Network conferences and events throughout the world.
    • 25% discount off merchandise at conferences and in our online shop for up to two representatives.
  • Connect directly with PFIC Network leadership and an international coalition of PFIC advocates
    • Learn more about PFIC Network projects, initiatives, and news.
    • Create new ways to increase global awareness, improve patient support, and advance research.
    • Collaborate with affiliates in other countries by participating in the International Alliance.

Alone we are Rare, Together we are Mighty. Together, we are #ItchingForACure.
Join the PFIC Network’s Affiliate Program.