Science & Research

PFIC Network is committed to improving treatment options, slowing disease progression, and ultimately finding a cure for PFIC related diseases. We support a variety of scientific and research initiatives related to PFIC. From funding research directly to collecting data in our patient registry to bringing together the research and patient communities at our annual conference, we are always itching for a cure.

PFIC Network Patient Registry

The PFIC Network Patient Registry (patient registry) collects patient-reported outcomes about diagnosis, symptoms, treatments, itch, sleep, general health, and family quality of life. Learn more about how you can help to emphasize the patient experience in research.
Annual Small Grant Program

The Annual PFIC Network Small Grant Program was started in 2021. Each year we aim to provide a grant funding opportunity of $30,000. Learn more about the Small Grant Program, the current funding opportunity announcement, and how to apply .

 
External Research Projects

PFIC Network provides information about external planned and ongoing PFIC research. View current and ongoing trials and studies.
PFIC Research Library

Read lay summaries of scientific articles related to progressive familial intrahepatic cholestasis (PFIC).
PFIC Family & Scientific Conference 2023

We aim to bring together patients & families, clinicians, researchers and industry in order to share scientific knowledge, share patient experiences, and identify ways that we can collectively improve the lives of patients and families affected by PFIC worldwide. Learn more about the conference here.

About Us

Get Involved

The Disease