Patient and Provider Outreach Program

Educational Outreach Program

For PFIC Patients & Providers

PFIC Network offers free patient & provider outreach materials to our community.

Clinicians and healthcare providers are some of the best allies we have in our efforts to educate and connect with PFIC patients. As a patient led organization, we understand the value of having educational resources and a point of connection upon diagnosis. These resources were developed with the support of our Medical Advisory Board, and have been given the NASPGHAN Excellence in Education Award. Our vision is a future where newly diagnosed PFIC patients have access to educational and support resources as soon as they start their rare disease journey. Our provider outreach initiative is an integral part of achieving this goal.

Materials in this packet are available both in print and digitally. They are available in over 17 different languages. 

For digital copies, please scroll down and download a copy in your preferred language.

For print copies, please use the forms below to make a request.

If you are a healthcare provider or clinician and would like to receive free educational materials for your patients, please fill out the form below:

If you are a patient and would like to connect your healthcare provider with resources for patients, please fill out the form below:

Digital Provider Outreach Packets Available for Download

If you would like to request materials in a new language, please contact us.
The educational brochure is available in additional languages here.