Careers

Location: Remote
Worker Classification: Independent Contractor
FTE: Part-time (8-10 hrs/week)
Anticipated Compensation: $32/hr
Contract Period: January 1, 2027-December 31, 2027

Position Summary

PFIC Network has received a PCORI Eugene Washington Engagement Award (EACB-42398), to build capacity for patient-centered comparative clinical effectiveness research on PFIC. The award period started in January 2026 and will end December 2027. As part of this award, we have established a Steering Committee: a balanced group of individuals living with PFIC, their families,  healthcare professionals, and researchers. The committee’s task is to establish PFIC Network’s Consortium for Patient-Centered Research on PFIC by developing its governance charter and research agenda.

The Consortium Research Administrator is going to support this work by coordinating committee meetings, records, and policy documentation, and supporting the administration of this PCORI award. Reporting to the Associate Director of Programs, this is a fixed-term independent contractor engagement for 10-hr/week for the remainder of the award period (i.e., until December 31st 2027).

Responsibilities

Consortium Coordination & Member Support

• Coordinate and attend Consortium Steering Committee and related meetings
• Prepare pre-meeting materials, take minutes, and share them with committee members post hoc
• Keep organized records of consortium activity and correspondence
• Maintain the consortium’s governance documents (charter, membership records) and keep decisions and policies documented and easy to find
• Serve as the go-to contact for consortium members on administrative questions
• Support onboarding for new consortium members and collaborators

PCORI Award Administration

• Track milestone and deliverable schedules; flag upcoming submission deadlines
• Compile documentation and draft content for interim and final progress reports, for review and submission by the Project Lead
• Maintain PCORI Authorized User records and related registrations
• Support prep materials for routine PCORI check-in calls

Policy & Process Development

• Help draft and refine consortium policies and procedures
• Bring recommendations to the committee for review

Anticipated level of effort: 8-10 hours/week under normal operations. Any change to the anticipated level of effort will be documented in a written amendment to the contractor agreement and compensated at the agreed hourly rate.

Position Requirements

Education / Experience

• Bachelor’s degree preferred; a degree in business administration, health sciences, public administration, or a related field preferred
• 2+ years of experience in grant administration, clinical research coordination, or equivalent experience in the public health sector

Knowledge, Skills, & Abilities

• Experience supporting administration or operations for a clinical research program or professional consortium
• Meeting management: agendas, minutes, follow-through on action items
• Working knowledge of research grants & institutional contracts
• Clear, plain-language writing; able to translate technical or regulatory language for non-specialist audiences
• Fluent in spoken and written English
• Highly organized and reliable; comfortable working independently with limited day-to-day oversight
• Proficient with standard collaboration tools (Google Workspace or similar, video conferencing); comfortable learning project-tracking tools such as Asana

Preferred (not required)

• Experience in research administration, grants management, or federally sponsored programs
• Experience with patient advocacy organizations
• Familiarity with nonprofit governance structures (i.e., steering committees, charters, bylaws)
• Familiarity with human subjects research protections and IRB processes
• Certified Research Administrator (CRA) credential, a plus but not expected given the entry-level nature of this role. If not held at hire but the candidate is close to eligible and interested in pursuing it, PFIC Network will reimburse up to $400 for the exam fee upon certification. This repayment condition does not apply if PFIC Network ends the engagement early due to loss of funding.

Other Requirements

• Travel: position is fully remote, with reimbursed travel to one in-person meeting per year as needed
• Driver’s license / vehicle: not applicable
• Schedule flexibility: availability for occasional evening or weekend meetings to accommodate consortium members across time zones and volunteer schedules

Working Conditions

• Remote
• Standard home/virtual office setup; PFIC Network has no physical office location

Physical Requirements

• Ability to sit for extended periods
• Vision, hearing, and speaking required to use a computer and participate in virtual meetings
• Occasional lifting up to 10 lbs. (files/equipment), if needed