Rare disease can be a lonely and isolating experience. However, it doesn’t have to be.
Having a mentor who has a shared lived experience and understands the unique burden of PFIC provides a special kind of support that can help empower patients, families and caregivers to feel ready to tackle the challenges of living with the disease.
A Mentor can be a:
- Role Model
- Sounding board for new ideas
- Person to talk with
- Connection to help access available resources
Are you a patient or caregiver interested in becoming a Peer Mentor?
Make a difference in someone’s life today. Contact our parent representative, Lisa Crompton, at firstname.lastname@example.org and we will provide you with a helpful PFIC Peer Mentor Guide & Resource Cheat Sheet and connect you with a peer in the community.