Whether you are a patient, caregiver, family member, or friend, you have a unique and important story to tell about PFIC and related diseases. These stories are our community’s greatest tool, as they share our strength, resilience, and the lessons we’ve learned. They also help more clearly reveal our unmet needs, so that we can help guide advocacy efforts and inspire scientific research to address them.
Use the form below to tell your story, and even attach photos and artwork. Interested in sharing your story over video? Contact email@example.com.