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2024 PFIC Research Grant Results

PFIC Colors: Raising Awareness with Ipsen

Back when we were founded, PFIC genetic conditions were not at all well known. Fast-forward to today and that...

Project REACH Across the Globe

In July 2022, PFIC Network was honored to receive a Global Genes Health Equity in RARE Patient Impact grant...

CZI Award: A Look Back On Year One

Pictured above: Our team was able to meet and gain valuable insights from other CZI Rare As One Network ...

NICE makes decision to not recommend reimbursement-Community Action Needed

We learned today that the National Institute for Health & Care Excellence (NICE), the drug decision-making body for England...

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