Rare but mighty
Progressive Familial Intrahepatic Cholestasis (PFIC) is a rare genetic (inherited) disorder that causes progressive liver disease which typically leads to liver failure. The hallmark feature of this disorder is severe debilitating pruritus (itching).
Family Stories
Our mission is to improve the lives of patients and families worldwide affected by PFIC. We support research programs, provide educational materials, match families for peer support, and participate in advocacy opportunities.
Our mission is to improve the lives of patients and families worldwide affected by PFIC. We support research programs, provide educational materials, match families for peer support, and participate in advocacy opportunities.
PFIC SpotLight
Rare Disease Day is the official international awareness-raising campaign for rare diseases.Rare Disease Day takes place on the last day of the year. The main objective of the campaign is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
The day was launched by EURORDIS-Rare Diseases Europe and its Council of National Alliances in 2008.
