Progressive Familial Intrahepatic Cholestasis
Rare But Mighty
Progressive Familial Intrahepatic Cholestasis (PFIC) is a rare genetic (inherited) disorder that causes progressive liver disease which typically leads to liver failure. The hallmark feature of this disorder is severe debilitating pruritus (itching).
A major step in developing knowledge and treatment options for pfic is to register as a patient.
Visit the clinical trials page for more information on current research opportunities
Our mission is to improve the lives of patients and families worldwide affected by PFIC. We support research programs, provide educational materials, match families for peer support, and participate in advocacy opportunities.
PFIC SpotLightOur Peer Support Programs are developed to support our mission to improve the lives of patients and families affected by PFIC.
The PFIC Network is honored to be able to offer programs specifically for patients and caregivers affected by Progressive Familial Intrahepatic Cholestasis, PFIC.
If you or someone you know is affected by PFIC and could benefit from mentorship, a care package or financial support, please check out our peer support programs and find out how we can help!