Family Stories

Our mission is to improve the lives of patients and families worldwide affected by PFIC. We support research programs, provide educational materials, match families for peer support, and participate in advocacy opportunities.

A major step in developing knowledge and treatment options for pfic is to register as a patient.

Visit the clinical trials page for more information on current research opportunities

PFIC SpotLight

Rare Disease Day is the official international awareness-raising campaign for rare diseases.

Rare Disease Day takes place on the last day of the year. The main objective of the campaign is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

The day was launched by EURORDIS-Rare Diseases Europe and its Council of National Alliances in 2008.