Progressive Familial Intrahepatic Cholestasis (PFIC)
Make an IMPACT!
PFIC Network was selected for PCORI Engagement Award funding (EASO-30455) for its new project titled IMPACT! Through this project, we will prepare the PFIC community for patient-centered outcomes research.
PFIC Support Groups
Virtual PFIC Support Groups provide a safe and welcoming space in which patients, family members and caregivers of PFIC patients can connect with one another, share their experiences, and offer one another support. All patients, caregivers, and family members are invited to join.
Latest Blog Post
Empowering Young Advocates: How to Advocate for Yourself as a Child or Teenager with PFIC
By: Lindsey Gram We hope you enjoy this first post in a two-part series about…
Upcoming events
PFIC SpotLight
Our Support Programs are developed to support our mission to improve the lives of patients and families affected by PFIC.The PFIC Network is honored to be able to offer programs specifically for patients and caregivers affected by Progressive Familial Intrahepatic Cholestasis, PFIC.
If you or someone you know is affected by PFIC and could benefit from mentorship, a care package or financial support, please check out our peer support programs and find out how we can help!
