Family Stories

Our mission is to improve the lives of patients and families worldwide affected by PFIC. We support research programs, provide educational materials, match families for peer support, and participate in advocacy opportunities.

A major step in developing knowledge and treatment options for pfic is to register as a patient.

Visit the clinical trials page for more information on current research opportunities

PFIC SpotLight

Our Peer Support Programs are developed to support our mission to improve the lives of patients and families affected by PFIC.

The PFIC Network is honored to be able to offer programs specifically for patients and caregivers affected by Progressive Familial Intrahepatic Cholestasis, PFIC.

If you or someone you know is affected by PFIC and could benefit from mentorship, a care package or financial support, please check out our peer support programs and find out how we can help!