Progressive Familial Intrahepatic Cholestasis (PFIC)

What is PFIC?

Progressive Familial Intrahepatic Cholestasis (PFIC) is an umbrella term that represents a group of rare genetic disorders that cause cholestatic liver disease and can lead to cirrhosis and end-stage liver disease.

We offer a variety of educational resources designed to help families understand this complex disease including a patient brochure translated into 19 languages and a library of webinars from PFIC experts.

A major step in developing knowledge and treatment options for PFIC is to register as a patient.

Latest Blog Post


Rare Siblings

By: Lisa Jensen, PFIC Network Support Group Facilitator When one family member receives a diagnosis…

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PFIC Spotlight: Support

PFIC Network was founded by PFIC families & providing direct support and disease education to patients is at the heart of our organization.

If you or someone you know is affected by PFIC and could benefit from a free care package, financial assistance, or mental health support, please check out our support programs and find out how we can help! While we are US-based we support families all over the world.

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