Progressive Familial Intrahepatic Cholestasis (PFIC)

Grow the Story. Fuel the Future.

PFIC is rare, and every story matters—every subtype, every age, everywhere in the world. By joining the PFIC Registry or completing your follow-up surveys every six months, you help fill critical gaps in knowledge and bring us closer to better treatments for all who live with PFIC.

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What is PFIC?

Progressive Familial Intrahepatic Cholestasis (PFIC) is an umbrella term that represents a group of rare genetic disorders that cause cholestatic liver disease and can lead to cirrhosis and end-stage liver disease.

We offer a variety of educational resources designed to help families understand this complex disease including a patient brochure translated into 19 languages and a library of webinars from PFIC experts.

Explore our educational resources

A major step in developing knowledge and treatment options for PFIC is to register as a patient.

Learn More About our Patient Registry

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PFIC Spotlight: Support

PFIC Network was founded by PFIC families & providing direct support and disease education to patients is at the heart of our organization.

If you or someone you know is affected by PFIC and could benefit from a free care package, financial assistance, or mental health support, please check out our support programs and find out how we can help! While we are US-based we support families all over the world.

Explore our Support Programs