Progressive Familial Intrahepatic Cholestasis (PFIC)
IMPACT: TEA is live!
The PFIC IMPACT Treatment Experience App (IMPACT:TEA) was designed by PFIC families and clinicians to provide information about PFIC treatments and patients’ experiences with them. It includes a survey to help us gather more info about patients’ experiences so that we can start to design research studies that are directly relevant to the PFIC community!
What is PFIC?
Progressive Familial Intrahepatic Cholestasis (PFIC) is an umbrella term that represents a group of rare genetic disorders that cause cholestatic liver disease and can lead to cirrhosis and end-stage liver disease.
We offer a variety of educational resources designed to help families understand this complex disease including a patient brochure translated into 19 languages and a library of webinars from PFIC experts.
Latest Blog Post
2024 Conference Summary Report
The 2024 PFIC Family & Scientific Conference in April was our largest conference yet! We…
Upcoming events
PFIC Spotlight: Support
PFIC Network was founded by PFIC families & providing direct support and disease education to patients is at the heart of our organization.If you or someone you know is affected by PFIC and could benefit from a free care package, financial assistance, or mental health support, please check out our support programs and find out how we can help! While we are US-based we support families all over the world.
