Progressive Familial Intrahepatic Cholestasis

Rare but mighty

Progressive Familial Intrahepatic Cholestasis (PFIC) is a rare genetic (inherited) disorder that causes progressive liver disease which typically leads to liver failure. The hallmark feature of this disorder is severe debilitating pruritus (itching).

Learn More About Progressive Familial Intrahepatic Cholestasis

Family Stories

Our mission is to improve the lives of patients and families worldwide affected by PFIC. We support research programs, provide educational materials, match families for peer support, and participate in advocacy opportunities.

Meet More Families

A major step in developing knowledge and treatment options for pfic is to register as a patient.

Visit the clinical trials page for more information on current research opportunities

Learn More About our Patient Registry

Our mission is to improve the lives of patients and families worldwide affected by PFIC. We support research programs, provide educational materials, match families for peer support, and participate in advocacy opportunities.

Education

You can learn more about PFIC, its subtypes and existing therapies. We have numerous resources across our website that anyone can use.

 Get Informed
Education
Up-to-Date Research

Stay up do date on some of the very important work that is going on to further treatment and management options for PFIC.

 Get Informed
Up-to-Date Research
Community Events

Go here to learn more about community events.

 Get Informed
Community Events
PFIC Family Volunteers

Help us further our mission by becoming a volunteer!

 Get Informed
PFIC Family Volunteers
Dedicated Donors

Our mission is supported by our generous donors. Donations ensure that all of our educational and support programs are offered free of charge to everyone.

 Get Informed
Dedicated Donors
Support & Stories

Read our stories and find strength in those in who have shared their story with PFIC. We are one community.

 Get Informed
Support & Stories

PFIC SpotLight

Our Peer Support Programs are developed to support our mission to improve the lives of patients and families affected by PFIC.

The PFIC Network is honored to be able to offer programs specifically for patients and caregivers affected by Progressive Familial Intrahepatic Cholestasis, PFIC.

If you or someone you know is affected by PFIC and could benefit from mentorship, a care package or financial support, please check out our peer support programs and find out how we can help!

Explore our Peer Support Programs