PFIC Hospital Directory

PFIC Hospital Directory

photo of an infant PFIC patient in a hospital bed with her mother looking on

This PFIC Hospital Directory has been created to assist patients and families with PFIC in connecting with hospitals that are familiar with treating PFIC. PFIC is an ultra-rare liver disease that many providers have not treated before. However there are hospitals and providers worldwide who both provide care for and specialize in PFIC and other cholestatic liver diseases.  This list is not an exhaustive list of all hospitals and providers with PFIC experience. At this time, PFIC Network is not able to validate the experience of the listed treating programs or providers. However, in some cases we may be able to help connect patients with experts in their area. If you are having trouble finding a provider in your area with PFIC expertise, please contact us.

The hospitals that are marked with an asterisk (*) participate in one of several research networks that specialize in PFIC.

Hospitals in Asia


Children’s Hospital of Fudan University, Shanghai, China

399 Wanyuan Rd, Minhang District
Shanghai, China



Sir Padampat Mother & Child Health Institute SMS Medical College- Rare Disease Clinic



Pediatric Gastroenterology, Hepatology and Liver transplant physician, Dr. Rela Institute and Medical Center



Chaitanya Hospital Sector 44 C


Institute of Liver and Biliary Sciences
Global Hospital
Medanta Hospital Gurgaon


Institute of Gastroenterology, Nutrition and Liver Diseases, Schneider children’s Medical Centre of Israel

The Institute of Gastroenterology, Nutrition and Liver Diseases, 6th Floor
4 Kaplan Street, PO Box 559
Petach Tikvah 4920235,  Israel


Hotel Dieu De France Hospital Pediatrics

Alfred Naccache Boulevard،
Beirut, Lebanon


Pediatrics and Clinical Genetics Children’s Clinic

Room C 3rd Floor tan building, 629 V. Rama Avenue (English),
6000 Cebu City, Philippines

Saudi Arabia

Liver & SB Transplant & Hepatobiliary-Pancreatic Surgery, King Faisal Specialist Hospital & Research Centre, Riyadh Saudi Arabia

Zahrawi St, Al Maather، Al Maazer
Riyadh 12713, Saudi Arabia


Hospital Umraniye Training and Research Hospital, Istanbul

Üniversiteler, Hacettepe Beytepe Kampüsü
06800 Çankaya/Ankara, Turkey

Istanbul University, Istanbul Faculty of Medicine, Istanbul Turkey

Topkapı, Turgut Özal Millet Cd
34093 Fatih/İstanbul, Turkey

Koc University School of Medicine, Paediatric GI and Hepatology Liver Transplantation Centre, Kuttam system in Liver Medicine, Istanbul Turkey

Pediatric Gastroenterology and Hepatology, Koç Üniversitesi
Rumelifeneri Yolu 34450 Sarıyer İstanbul

United Arab Emirates

Sheikh Khalifa Medical City, Abu Dhabi United Arab Emirates

Pediatric Institute, Karama Street
Abu Dhabi, United Arab Emirates


Queensland Children’s Hospital

Royal Children’s Hospital Melbourne

The Sydney’s Children’s Hospital Network (Westmeand)

The Sydney’s Children’s Hospital Network (Randwick)

Perth Children’s Hospital

Women’s and Children’s Hospital South Australia



Universite Catholique de Louvain, Cliniques St Luc

PEDI, Avenue Hippocrate 10/B2 1200
Woluwe-Saint-Lambert, Belgium

Place de l’Université 1 1348
Ottignies-Louvain-la-Neuve, Belgium


Kings College, London, UK

King’s College Hospital, Institute of Liver Studies
Denmark Hill, London SE5 9RS

Guthrie Clinic, King’s College Hospital, NHS Foundation Trust
Denmark Hill, London SE5 9RS

Liver Unit, Birmingham Women’s and Children’s Hospital

Paediatric Hepatologist, Birmingham Children’s Hospital
Steelhouse Lane, Birmingham B4 6NH


Service de Biochemie, Bicetre Hospital, AP-HP, Universite Paris-Sud, Paris Sacly, Inserm UMR-S 1174, France

Pôle BPP, CHU Paris-Sud – Hôpital de Bicêtre, 78 rue du Général Leclerc

Service d’Hepatologie et de Transplantation Hepatique Pediatriques, Bicetre Hospital, AP-HP, Universite Paris-Sud, Paris Saclay, Inserm UMR-S-1174, France

Pediatric hepato-gastroenterology,78 rue du Général Leclerc
94270 The Kremlin-Bicêtre

Service d’hépatologie et de transplantation hépatique pédiatriques, CHU Paris-Sud – Hôpital de Bicêtre
78 rue du Général Leclerc

Unite d’hepatologie Pediatrique et Transplantation, Hopital Necler, Paris, France

Gastroenterology, hepatology and nutrition, pediatric
149 Rue de Sèvres
75015 Paris, France


Klinik Fur Kinder-Und jugendmedizin, Universitatsklinikum Hamburg Eppendork Hamburg, Germany

Center for Obstetrics and Pediatrics, Department of Pediatrics, Universitätsklinikum Hamburg-Eppendorf (UKE)
Martinistraße 52
20251 Hamburg 

University Children’s Hospital Tubingen, Tubingen, Germany

Department of Paediatrics
Hoppe-Seyler-Straße 1 72076 Tübingen


1st Department of Paediatrics, Semmelweis University, Bedapest, Hungary

Department of Paediatrics
H-1083 Budapest
Bókay János u. 53-54


Paediatric and Liver Unit, Meyer Children’s University Hospital of Florence

Paediatric and Liver Unit, Meyer Children’s University Hospital of Florence
Viale Gaetano Pieraccini 24
Firenze 50139, Italy

Pediatric Gastroenterology Unit, Regina Marghaerita Children’s Hospital Azienda Ospedaliera Citta Della Alute e Della Scienza University Hospital, Torino Italy

Corso Bramante, 88
10126 Torino TO, Italy

Pediatric Hepatology, Gastroenterology and Transplantation, Ospedale Pap Giovanni XXIII, Bergamo, Italy

Piazza OMS, 1
24127 Bergamo BG, Italy

Servizio Di Epatologia e Nutrizione Pediatrica, Fondazione Irccs Ca’Granda Ospedale Maggiore Policinico, Milano, Italy

Via Francesco Sforza, 35
20122 Milano MI, Italy


*Paediatric Surgery, University Medical Centre Groningen, Groningen, The Netherlands

 University of Groningen, Center for Pediatric Surgery
9712 CP
Groningen, Netherlands

Pediatric Gastroenterology and Hepatology, University Medical Centre Groningen, University of Groningen, The Netherlands

MWF-complex, Faculty of Medical Sciences
9713 AV
Groningen, The Netherlands

Pediatric Gastroenterology and Hepatology, University Medical Centre Groningen, University of Groningen, The Netherlands

Hanzeplein 19713 GZ
Groningen, room S4.218

Wilhelmina Children’s Hospital, University Medical Centre Utrecht, Paediatric Gastroenterology, Hepatollgy and Nutrition, Utrecht, The Netherlands

Lundlaan 6, 3584 EA
Utrecht, The Netherlands


Gastroenterology, Hepatology, Nutritional Disorders and Paediatrics, The Children”s Memorial Health Institue, Warsaw, Poland

aleja Dzieci Polskich 20
04-730 Warszawa, Poland


Coimbra University Hospital Center, Coimbra, Portugal

Praceta Professor Mota Pinto
3004-561 Coimbra, Portugal


Department of Gastroenterology, Hepatology and Nutrition, University Children’s Hospital Ljubljana and Department of Paediatrics, Faculty of Medicine, University of Ljubljana, Ljubljana, Slovenia

Zaloška cesta 7
1000 Ljubljana, Slovenia


Pediatric Liver Service, La Paz University Hospital, Madrid, Spain

Servicio de Hepatología infantil, Paseo de la Castellana, 261

North America


The Hospital for Sick Children and the University of Toronto, Toronto, Canada

Gastroenterology, Hepatology and Nutrition
555 University Avenue
Toronto, Ontario, M5G 1X8

Toronto Centre for Liver Disease, University Health Network, Canada

Institute of Health Policy, Management and Evaluation, University of Toronto, Health Sciences Building
155 College Street, Suite 425
Toronto, ON M5T 3M6


Instituto Nacional de Pediatria

Servicio de Gastroenterología y Nutrición (4to piso), Instituto Nacional de Pediatria, Insurgentes Sur 3700-C, Colonia Insurgentes Cuicuilco
Coyoacán, CP 04530, Mexico City. 

United States

*Ann & Robert H. Lurie Children’s Hospital of Chicago

Pediatric Gastroenterology/Hepatology & Nutrition

225 East Chicago Ave #57
Chicago, IL 60611

*Children’s Healthcare of Atlanta

Children’s Healthcare of Atlanta/Emory University
1760 Haygood Dr, HSRB E204
Atlanta, GA 30322

*Children’s Hospital Colorado

13123 East 16th Ave, Box B290
Aurora, CO 80045

*Children’s Hospital Los Angeles

Department of Pediatric Surgery
4650 Sunset Blvd, MS #100
Los Angeles, CA 90027

*UCSF Benioff Children’s Hospital

Department of Pediatrics, Division of Gastroenterology, Hepatology and Nutrition
550 16th Street, 5th Floor, Mail code 0136
San Francisco, CA 94143

*Children’s Hospital of Pittsburgh of UPMC

Division of Pediatric Gastroenterology, Hepatology and Nutrition
4401 Penn Ave, Faculty Pavilion, Fl 6
Pittsburgh, PA 15224

*The Children’s Hospital of Philadelphia

Division of Gastroenterology, Hepatology and Nutrition
3401 Civic Center Blvd
Philadelphia, PA 19104

*Cincinnati Children’s Hospital Medical Center

Division of Pediatric Gastroenterology, Hepatology & Nutrition
3333 Burnet Ave, MLC 2010
Cincinnati, OH 45229

*Riley Hospital for Children/Indiana University

Indiana University School of Medicine
705 Riley Hospital Dr, ROC 4210
Indianapolis, IN 46202

*Saint Louis University/Cardinal Glennon Children’s Medical Center

Cardinal Glennon Children’s Medical Center
1465 South Grand Blvd, Room 2731
St Louis, MO 63104

*Seattle Children’s Hospital

Division of Gastroenterology & Hepatology
4800 Sand Point Way NE
Seattle, WA 98105

*Texas Children’s Hospital

Texas Children’s Hospital
6701 Fannin, Suite 1010
Houston, TX 77030

*University of Utah/ Primary Children’s Hospital

Division of Pediatric Gastroenterology, Hepatology and Nutrition
81 Mario Capecchi Drive
Salt Lake City Utah 84112

Duke Children’s Hospital & Health Center, Durham NC

Division of Gastroenterology – 919-684-2410 or call 919-684-8111 for General Information
2301 Erwin Rd
Durham, NC 27705

South America


Hospital das Clínicas de Ribeirão Preto – USP.

R. Ten. Catão Roxo, 3900 – Vila Monte Alegre
Ribeirão Preto – SP, 14015-010, Brazil