PFIC Hospital Directory
This PFIC Hospital Directory has been created to assist patients and families with PFIC in connecting with hospitals that are familiar with treating PFIC. PFIC is an ultra-rare liver disease that many providers have not treated before. However there are hospitals and providers worldwide who both provide care for and specialize in PFIC and other cholestatic liver diseases. This list is not an exhaustive list of all hospitals and providers with PFIC experience. At this time, PFIC Network is not able to validate the experience of the listed treating programs or providers. However, in some cases we may be able to help connect patients with experts in their area. If you are having trouble finding a provider in your area with PFIC expertise, please contact us.
The hospitals that are marked with an asterisk (*) participate in one of several research networks that specialize in PFIC.
Hospitals in Asia
China
Children’s Hospital of Fudan University, Shanghai, China
399 Wanyuan Rd, Minhang District
Shanghai, China
India
Jaipur
Sir Padampat Mother & Child Health Institute SMS Medical College- Rare Disease Clinic
Website: www.rarediseasesregistryindia.com
Chennai
Pediatric Gastroenterology, Hepatology and Liver transplant physician, Dr. Rela Institute and Medical Center
Website: www.relainstitute.com
Chandigarh
Chaitanya Hospital Sector 44 C
Delhi
Institute of Liver and Biliary Sciences
Global Hospital
Medanta Hospital Gurgaon
Israel
Institute of Gastroenterology, Nutrition and Liver Diseases, Schneider children’s Medical Centre of Israel
The Institute of Gastroenterology, Nutrition and Liver Diseases, 6th Floor
4 Kaplan Street, PO Box 559
Petach Tikvah 4920235, Israel
Lebanon
Hotel Dieu De France Hospital Pediatrics
Alfred Naccache Boulevard،
Beirut, Lebanon
Phillipines
Pediatrics and Clinical Genetics Children’s Clinic
Room C 3rd Floor tan building, 629 V. Rama Avenue (English),
6000 Cebu City, Philippines
Saudi Arabia
Liver & SB Transplant & Hepatobiliary-Pancreatic Surgery, King Faisal Specialist Hospital & Research Centre, Riyadh Saudi Arabia
Zahrawi St, Al Maather، Al Maazer
Riyadh 12713, Saudi Arabia
Turkey
Hospital Umraniye Training and Research Hospital, Istanbul
Üniversiteler, Hacettepe Beytepe Kampüsü
06800 Çankaya/Ankara, Turkey
Istanbul University, Istanbul Faculty of Medicine, Istanbul Turkey
Topkapı, Turgut Özal Millet Cd
34093 Fatih/İstanbul, Turkey
Koc University School of Medicine, Paediatric GI and Hepatology Liver Transplantation Centre, Kuttam system in Liver Medicine, Istanbul Turkey
Pediatric Gastroenterology and Hepatology, Koç Üniversitesi
Rumelifeneri Yolu 34450 Sarıyer İstanbul
United Arab Emirates
Sheikh Khalifa Medical City, Abu Dhabi United Arab Emirates
Pediatric Institute, Karama Street
Abu Dhabi, United Arab Emirates
Australia
Queensland Children’s Hospital
https://www.childrens.health.qld.gov.au/service-gastroenterology-hepatology-liver-transplant/
Royal Children’s Hospital Melbourne
https://www.rch.org.au/gastro/the_team/
The Sydney’s Children’s Hospital Network (Westmeand)
The Sydney’s Children’s Hospital Network (Randwick)
Perth Children’s Hospital
https://pch.health.wa.gov.au/Our-services/Gastroenterology
Women’s and Children’s Hospital South Australia
https://www.wch.sa.gov.au/services/az/divisions/paedm/gastro/Gastroenterology_Department_Staff.html
Europe
Belgium
Universite Catholique de Louvain, Cliniques St Luc
PEDI, Avenue Hippocrate 10/B2 1200
Woluwe-Saint-Lambert, Belgium
Place de l’Université 1 1348
Ottignies-Louvain-la-Neuve, Belgium
England
Kings College, London, UK
King’s College Hospital, Institute of Liver Studies
Denmark Hill, London SE5 9RS
Guthrie Clinic, King’s College Hospital, NHS Foundation Trust
Denmark Hill, London SE5 9RS
Liver Unit, Birmingham Women’s and Children’s Hospital
Paediatric Hepatologist, Birmingham Children’s Hospital
Steelhouse Lane, Birmingham B4 6NH
France
Service de Biochemie, Bicetre Hospital, AP-HP, Universite Paris-Sud, Paris Sacly, Inserm UMR-S 1174, France
Pôle BPP, CHU Paris-Sud – Hôpital de Bicêtre, 78 rue du Général Leclerc
94270 LE KREMLIN-BICÊTRE, FRANCE
Service d’Hepatologie et de Transplantation Hepatique Pediatriques, Bicetre Hospital, AP-HP, Universite Paris-Sud, Paris Saclay, Inserm UMR-S-1174, France
Pediatric hepato-gastroenterology,78 rue du Général Leclerc
94270 The Kremlin-Bicêtre
Service d’hépatologie et de transplantation hépatique pédiatriques, CHU Paris-Sud – Hôpital de Bicêtre
78 rue du Général Leclerc
94270 LE KREMLIN-BICÊTRE, FRANCE
Unite d’hepatologie Pediatrique et Transplantation, Hopital Necler, Paris, France
Gastroenterology, hepatology and nutrition, pediatric
149 Rue de Sèvres
75015 Paris, France
Germany
Klinik Fur Kinder-Und jugendmedizin, Universitatsklinikum Hamburg Eppendork Hamburg, Germany
Center for Obstetrics and Pediatrics, Department of Pediatrics, Universitätsklinikum Hamburg-Eppendorf (UKE)
Martinistraße 52
20251 Hamburg
University Children’s Hospital Tubingen, Tubingen, Germany
Department of Paediatrics
Hoppe-Seyler-Straße 1 72076 Tübingen
Hungary
1st Department of Paediatrics, Semmelweis University, Bedapest, Hungary
Department of Paediatrics
H-1083 Budapest
Bókay János u. 53-54
Italy
Paediatric and Liver Unit, Meyer Children’s University Hospital of Florence
Paediatric and Liver Unit, Meyer Children’s University Hospital of Florence
Viale Gaetano Pieraccini 24
Firenze 50139, Italy
Pediatric Gastroenterology Unit, Regina Marghaerita Children’s Hospital Azienda Ospedaliera Citta Della Alute e Della Scienza University Hospital, Torino Italy
Corso Bramante, 88
10126 Torino TO, Italy
Pediatric Hepatology, Gastroenterology and Transplantation, Ospedale Pap Giovanni XXIII, Bergamo, Italy
Piazza OMS, 1
24127 Bergamo BG, Italy
Servizio Di Epatologia e Nutrizione Pediatrica, Fondazione Irccs Ca’Granda Ospedale Maggiore Policinico, Milano, Italy
Via Francesco Sforza, 35
20122 Milano MI, Italy
Netherlands
*Paediatric Surgery, University Medical Centre Groningen, Groningen, The Netherlands
University of Groningen, Center for Pediatric Surgery
9712 CP
Groningen, Netherlands
Pediatric Gastroenterology and Hepatology, University Medical Centre Groningen, University of Groningen, The Netherlands
MWF-complex, Faculty of Medical Sciences
9713 AV
Groningen, The Netherlands
Pediatric Gastroenterology and Hepatology, University Medical Centre Groningen, University of Groningen, The Netherlands
Hanzeplein 19713 GZ
Groningen, room S4.218
Wilhelmina Children’s Hospital, University Medical Centre Utrecht, Paediatric Gastroenterology, Hepatollgy and Nutrition, Utrecht, The Netherlands
Lundlaan 6, 3584 EA
Utrecht, The Netherlands
Poland
Gastroenterology, Hepatology, Nutritional Disorders and Paediatrics, The Children”s Memorial Health Institue, Warsaw, Poland
aleja Dzieci Polskich 20
04-730 Warszawa, Poland
Portugal
Coimbra University Hospital Center, Coimbra, Portugal
Praceta Professor Mota Pinto
3004-561 Coimbra, Portugal
Slovenia
Department of Gastroenterology, Hepatology and Nutrition, University Children’s Hospital Ljubljana and Department of Paediatrics, Faculty of Medicine, University of Ljubljana, Ljubljana, Slovenia
Zaloška cesta 7
1000 Ljubljana, Slovenia
Spain
Pediatric Liver Service, La Paz University Hospital, Madrid, Spain
Servicio de Hepatología infantil, Paseo de la Castellana, 261
28046 MADRID, SPAIN
North America
Canada
The Hospital for Sick Children and the University of Toronto, Toronto, Canada
Gastroenterology, Hepatology and Nutrition
555 University Avenue
Toronto, Ontario, M5G 1X8
Toronto Centre for Liver Disease, University Health Network, Canada
Institute of Health Policy, Management and Evaluation, University of Toronto, Health Sciences Building
155 College Street, Suite 425
Toronto, ON M5T 3M6
Mexico
Instituto Nacional de Pediatria
Servicio de Gastroenterología y Nutrición (4to piso), Instituto Nacional de Pediatria, Insurgentes Sur 3700-C, Colonia Insurgentes Cuicuilco
Coyoacán, CP 04530, Mexico City.
United States
Illinois
*Ann & Robert H. Lurie Children’s Hospital of Chicago
Pediatric Gastroenterology/Hepatology & Nutrition
225 East Chicago Ave #57
Chicago, IL 60611
Georgia
*Children’s Healthcare of Atlanta
Children’s Healthcare of Atlanta/Emory University
1760 Haygood Dr, HSRB E204
Atlanta, GA 30322
Colorado
*Children’s Hospital Colorado
13123 East 16th Ave, Box B290
Aurora, CO 80045
California
*Children’s Hospital Los Angeles
Department of Pediatric Surgery
4650 Sunset Blvd, MS #100
Los Angeles, CA 90027
*UCSF Benioff Children’s Hospital
Department of Pediatrics, Division of Gastroenterology, Hepatology and Nutrition
550 16th Street, 5th Floor, Mail code 0136
San Francisco, CA 94143
Pennsylvania
*Children’s Hospital of Pittsburgh of UPMC
Division of Pediatric Gastroenterology, Hepatology and Nutrition
4401 Penn Ave, Faculty Pavilion, Fl 6
Pittsburgh, PA 15224
*The Children’s Hospital of Philadelphia
Division of Gastroenterology, Hepatology and Nutrition
3401 Civic Center Blvd
Philadelphia, PA 19104
Ohio
*Cincinnati Children’s Hospital Medical Center
Division of Pediatric Gastroenterology, Hepatology & Nutrition
3333 Burnet Ave, MLC 2010
Cincinnati, OH 45229
Indiana
*Riley Hospital for Children/Indiana University
Indiana University School of Medicine
705 Riley Hospital Dr, ROC 4210
Indianapolis, IN 46202
Missouri
*Saint Louis University/Cardinal Glennon Children’s Medical Center
Cardinal Glennon Children’s Medical Center
1465 South Grand Blvd, Room 2731
St Louis, MO 63104
Washington
*Seattle Children’s Hospital
Division of Gastroenterology & Hepatology
4800 Sand Point Way NE
Seattle, WA 98105
Texas
*Texas Children’s Hospital
Texas Children’s Hospital
6701 Fannin, Suite 1010
Houston, TX 77030
Utah
*University of Utah/ Primary Children’s Hospital
Division of Pediatric Gastroenterology, Hepatology and Nutrition
81 Mario Capecchi Drive
Salt Lake City Utah 84112
Duke Children’s Hospital & Health Center, Durham NC
Division of Gastroenterology – 919-684-2410 or call 919-684-8111 for General Information
2301 Erwin Rd
Durham, NC 27705
South America
Brazil
Hospital das Clínicas de Ribeirão Preto – USP.
R. Ten. Catão Roxo, 3900 – Vila Monte Alegre
Ribeirão Preto – SP, 14015-010, Brazil