by Lisa Jensen PFIC pulls a host of challenges in its wake. The waves are unique to each patient...
Navigating Emotions as a PFIC Parent By Lisa Jensen In Rare Siblings, we wrote that the best support for...
By: Lisa Jensen, PFIC Network Support Group Facilitator When one family member receives a diagnosis of a rare disease...
By Lisa Jensen Navigating a rare disease can feel like traversing a dark and unfamiliar room. There are fragile...
This month’s mental health blog post consists of a question from a community member, followed by a response from...