Did you know that there are several research networks dedicated to studying PFIC and other rare liver diseases? Sometimes...
A message from our Executive Director, Emily Ventura: In preparing to host our 5th PFIC Family & Scientific Conference...
We would like to take a moment to highlight some of the recent work being done by members of...
How to Advocate for Yourself as a Child or Teenager with PFIC By: Lindsey Gram This is the second...
By Lisa Jensen Navigating a rare disease can feel like traversing a dark and unfamiliar room. There are fragile...