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First research paper covering the PFIC Network Patient Registry published

We are proud to announce a significant milestone for the PFIC community: the publication of the first research paper...

An International PFIC Alliance: One world, one mission.

We are #StrongerTogether! Progressive Familial Intrahepatic Cholestasis (PFIC), compared to something like diabetes, is very rare and not very...

A Gap in Poland and What the Community Can Do

The Itch If you’re aware of PFIC, you know about pruritus. PFIC is a group of rare and debilitating...

PFIC Awareness Day 2025: A message to our community

Dear PFIC Community, Today is PFIC Awareness Day! Each year on PFIC Awareness Day, we come together to shine a...

Understanding PFIC Naming:

Looking Beyond the Numbers By Chunyue Yin, Ph.D What Is PFIC? PFIC stands for Progressive Familial Intrahepatic Cholestasis. It’s...

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