PFIC Network References

Stakeholder Roles in a Collaborative Research Model

Academic & Government Researchers: to develop an understanding of the causation and natural history of the disease and identify possible therapies

Government Regulators: To ensure the safety and efficacy

Patients & Caregivers: to participate in the research process: identifying treatment priorities, focusing research efforts and funding basic and clinical research

Pharmaceutical & Biotech Companies: to develop an understanding of the causation and natural history of the disease and identify possible therapies