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Pruritus Resources

by Lisa Jensen PFIC pulls a host of challenges in its wake. The waves are unique to each patient...

It’s Okay To Feel This Way:

Navigating Emotions as a PFIC Parent By Lisa Jensen In Rare Siblings, we wrote that the best support for...

Rare Siblings

By: Lisa Jensen, PFIC Network Support Group Facilitator When one family member receives a diagnosis of a rare disease...

Empowering Young Advocates: How to Advocate for Yourself as a Child or Teenager with PFIC

By: Lindsey Gram We hope you enjoy this first post in a two-part series about learning to be your...

6 Ways to Advocate for Yourself as a PFIC Patient or Parent – And Why It Matters

Written by: Lindsey GramOct 27, 2023 “The disease is so rare, so complex, and so unique, that if people...

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