CZI Awards $13 Million to Patient-Led Organizations Advancing Rare Disease Research

We have been granted the wonderful opportunity to join the Rare As One Network in part with the Chan Zuckerberg Initiative. We have partnered as a patient led community to work as a patient led collaborative research network, being experts on our own disease, to facilitate research programs for PFIC.

The CZI and RAO initiative align with our values as an organization of inclusivity, patient choice, science and research, and collaboration. We are thrilled to be working with such a well established initiative and organization to better provide support to the PFIC patient community.

Read more on the CZI website. Link below.