External Engagement Opportunities
For research or to improve scientific understanding of patient experiences with PFIC
We strive to protect the best interests of community members. All external engagement opportunities are submitted through a patient engagement form. All external partners receive a copy of and must abide by the PFIC Network’s Guidelines for External Stakeholder Engagement.
Current opportunities to get involved with rare disease and/or liver organizations
PFIC Network Community driven initiatives
Opportunities to participate and share & participate within the PFIC community
Do you want to write a blog post or maybe nominate someone to be in the community spotlight? Let us know by clicking the buttons below! All input is welcome.