News & Events

In 2021, the PFIC Network had an opportunity to speak to the Food and Drug Administration (FDA) to share our stories as PFIC patients and caregivers.

We invite you to join us at this hybrid event on May 4-6, 2023 in Orlando, Florida to get up to date on research and connect as a PFIC community.

See all events, council meetings and community initiatives on our annual calendar.

This page has links to news articles, press releases and patient and family stories that have been in the media.

Sometimes, we just need to write. Read blog posts from patients, caregivers, staff members as they post about their experiences as patient advocates.

Every year on October 5 our community comes together all over the world to raise awareness for PFIC related disorders.