PFIC Network Blog

A Natural Advocate

A natural advocate: Sharon lives in Canada with her 4 year old daughter who has PFIC 1 who had a liver transplant last year. Unfortunately, …
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Advocacy – A Mothers Voice

As the mother of a child with a rare disease I’ve always known that advocacy is important. We’ve been advocating for our 4 year old …
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Julia

In the brief time that we have been connected, Julia got to know our small pfic community. Even though she was going through her own …
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pfic italia

The itch won…

The writing below is a conversation I had with the mother that started the PFIC Italia Network. The foundation that is fighting PFIC, based in …
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