NICE makes decision to not recommend reimbursement-Community Action Needed September 21, 2021 No Comments We learned today that the National Institute for Health & Care Excellence (NICE), the drug decision-making body for England and Wales, put forth a decision … Read More Julia May 23, 2021 No Comments In the brief time that we have been connected, Julia got to know our small pfic community. Even though she was going through her own … Read More The itch won… May 7, 2021 No Comments The writing below is a conversation I had with the mother that started the PFIC Italia Network. The foundation that is fighting PFIC, based in … Read More My PFIC 2 child, all grown up & speaking up May 1, 2021 No Comments This morning, I got to listen to something really special. My daughter and her dad were interviewed for a podcast. Listening to this podcast was … Read More The Importance of the Patient Registry April 20, 2021 No Comments We get a lot of questions here at the PFIC Network about the future of treatment options, help for specific types of PFIC, and how … Read More – If you would like to write a blog post – Contact Us!