Every story we have to tell brings us one step closer to finding more treatment options for PFIC. Whether we are raising disease awareness, advocating for our families, ispiring hope or coming together at an event, our families are working tirelessly to make ourselves known.
What story would you like to tell?
“Itch like crazy” is the perfect saying for what PFIC patients go through 24/7.
Rare liver disease support and encouragement comes from a 10-year-old girl.
Boy’s rare disease causes constant itching.
How rare disease organization & advocacy networks can work as a team to bring patient communities together.
The rare disease community finds support from the PFIC Network.
Rare genetic disease, PFIC.
PFIC is a life-threatening disease to most. This mother is tirelessly raising awareness for her daughters disease.
Rare liver disease survivor want to help and encourage others.