Partnership Program & Financials

Corporate Sponsors/Industry Partners

Mirum Pharma

Based in California

Developed the medication, Maralixibat, currently in phase 3 clinical trials for PFIC

Albireo Pharma

Based in Boston, MA

Developed the medication, Odevixibat, currently in phase 3 clinical trials for PFIC

Small Business & NonProfit Partnerships

Positive Attraction Soaps

Based in KY

Provides custom hand made care packages for caregivers and patients

Enter Raffle

Sea & Stone Clothing

Based in KY

Provides custom design t-shirts and tote bags for raffles and events

Enter Raffle

Wild Asteria

Based in KY

Provides custom hand made jewelry

Enter Raffle

JMD Embroidery

Based in Canada

Provides personalized care packages for patients via the PFIC Pals and Care Package Programs

Lila Callie Photography

Based in KY

1 % of all proceeds goes to PFIC

Red Oaks

Based in KY

Supports PFIC with their Climbing for a Cure Program

Other Grants Received

Everylife Foundation

Dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures.

Global Genes

Empower patients, build communities & drive forward momentum for rare disease globally.

Professional Affiliations

Financial Statements

2019 IRS Filings