PFIC Network Partnership Program

graphic with the words "thank you to all of our partners for your support" along with the pfic network logo and a drawing of hands clasped together.

PFIC Network Partners

Our work at PFIC Network would not be possible without the generous support of our many PFIC Network partners. From corporate sponsors to raffle donors to fellow advocacy organizations to individual donors, all of our partners play an important role in furthering our mission. If you would like to be a part of improving the lives of PFIC patients and families all over the world, please contact us!

Corporate Sponsors/Industry Partners

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Mirum Pharma

Based in California

Developed the medication, Maralixibat, currently in phase 3 clinical trials for PFIC

https://www.pfic.org/clinical-trials-studies/

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Albireo Pharma

Based in Boston, MA

Developed the medication, Odevixibat, currently in phase 3 clinical trials for PFIC

https://www.pfic.org/clinical-trials-studies/

PFIC Network Partnered Businesses

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Miguel's Pizza

Miguel's Pizza restaurant first began in 1984 with the renovation of this historic 1940's store, serving good Italian style food in a friendly atmosphere. Centrally located in a scenic location across the street from Natural Bridge State park in the Red River Gorge area of Eastern Kentucky. It has become the "Gorge visitor hot spot"

https://www.facebook.com/MiguelsPizza

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Red River Rockhouse

An eclectic American cafe in Wolfe County, Kentucky. Serving locally sourced foods.

https://www.facebook.com/redriverrockhouse/

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Red Oaks

Based in KY

Supports PFIC with their Climbing for a Cure Program

https://www.redoaksforestschool.org/climbing-for-a-cure

PFIC Network Supporting Businesses

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Sea & Stone

Hand printed clothing

https://www.seaandstoneclothing.com/

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JMD Embroidery

Based in Canada

Provides personalized care packages for patients via the PFIC Pals and Care Package Programs

https://www.pfic.org/product-category/bears/

https://jmdembroidery.com/

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Skybridge Station

Your one-stop shop in the Red River Gorge! 12 LOCAL beers on tap, gourmet hot dogs, locally sourced hamburgers, quesadillas, lodging, tourist info, and the home of KRAG!

https://www.facebook.com/SkyBridgeStation

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Daniel Boone Coffee Shop

Fair trade, organic, regionally roasted coffee. We offer the best lattes in the gorge, fresh baked goods and much more! Also camp supplies and souvenirs

https://www.facebook.com/danielboonecoffeeshop

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Hop's Beer Garden & Restaurant

Beer Garden & Outdoor Dining

https://www.facebook.com/hopsatrrg

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Welcome Home Brewery

Welcome Home Brewery, is a cozy, homey tap room and brewery in Parker, CO. We make all our beer on site, and offer a selection of rotating seasonal beers and flagship styles.

https://www.facebook.com/WelcomeHomeBrewery

PFIC Awareness Day Raffle Donors

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Positive Attraction Soaps

Based in KY

Provides custom hand made care packages for caregivers and patients

https://www.positiveattractionsoaps.com/gifts

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Wild Asteria

Based in KY

Provides custom hand made jewelry

https://www.wildasteria.com/

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Lila Callie Photography

Based in KY

1 % of all proceeds goes to PFIC

https://www.lilacalliephotography.com/

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Shop Dove & Finn

At Shop Dove and Finn, we create handmade, unique, and affordable clay jewelry and accessories. Shop with us!

Located in the Red River Gorge, Kentucky

https://www.facebook.com/shopdoveandfinn

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Dreaming Creek Brewery

A craft brewery located in the heart of Daniel Boone's frontier.

https://www.facebook.com/dreamingcreekbrewery

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Earth Shop

Share your love of the gorge with the Red River Gorge Earth Shop, celebrating the nature and beauty of eastern Kentucky with local-made souvenirs and goods! Located in The Gorge Underground

https://www.facebook.com/RRGEarthshop

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Revival Ridge Farm

Small scale, diverse vegetable and flower farm located in the heart of Red River Gorge. Intentionally grown with love and care, for people and planet.

https://www.facebook.com/revivalridgefarmky

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West Sixth Brewing

A craft brewery & taproom located in a 140 year old bakery. West Sixth cans & distributes our award-winning beers through Kentucky and into Cincinnati, OH

https://www.facebook.com/westsixthbrewing

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Tiffany Nardico Photography

Tiffany Nardico is a local photographer capturing adventure around Red River Gorge, Kentucky.

https://www.facebook.com/eyeofthered

Other Grants Received

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Everylife Foundation

Dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures.

https://everylifefoundation.org/

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Global Genes

Empower patients, build communities & drive forward momentum for rare disease globally.

https://globalgenes.org/

PFIC Network Professional Affiliations

Special thanks to our donors

John & Denise Flannagan 

Friends & Family of Ellie Wong

Gabriella Farrell on behalf of Eva Bourton

Chris & Christy Peetz

Laureen & Ron Cooper

Sivaji Pasupuleti

The Hovey Family

The Matro Family: We Love You Cade Hovey! 

BellaHenna

Clara Kebabian

Friends & Family of the Perez Family

Software Donors

We’ve run multiple surveys covering events , donor feedback, volunteer surveys – all for free. Thank you QuestionPro!