Partnership Program & Financials

Corporate Sponsors/Industry Partners

Mirum Pharma

Based in California

Developed the medication, Maralixibat, currently in phase 3 clinical trials for PFIC

https://www.pfic.org/clinical-trials-studies/

Albireo Pharma

Based in Boston, MA

Developed the medication, Odevixibat, currently in phase 3 clinical trials for PFIC

https://www.pfic.org/clinical-trials-studies/

Other Grants Received

Everylife Foundation

Dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures.

https://everylifefoundation.org/

Global Genes

Empower patients, build communities & drive forward momentum for rare disease globally.

https://globalgenes.org/

Small Business & NonProfit Partnerships

Positive Attraction Soaps

Based in KY

Provides custom hand made care packages for caregivers and patients

https://www.positiveattractionsoaps.com/gifts

Enter Raffle

Sea & Stone Clothing

Based in KY

Provides custom design t-shirts and tote bags for raffles and events

https://www.seaandstoneclothing.com/

Enter Raffle

Wild Asteria

Based in KY

Provides custom hand made jewelry

https://www.wildasteria.com/

Enter Raffle

JMD Embroidery

Based in Canada

Provides personalized care packages for patients via the PFIC Pals and Care Package Programs

https://www.pfic.org/product-category/bears/

https://jmdembroidery.com/

Lila Callie Photography

Based in KY

1 % of all proceeds goes to PFIC

https://www.lilacalliephotography.com/

Red Oaks

Based in KY

Supports PFIC with their Climbing for a Cure Program

https://www.redoaksforestschool.org/climbing-for-a-cure

Financial Statements

2019 IRS Filings