Partnership Program & Financials

Corporate Sponsors/Industry Partners

Mirum Pharma

Based in California

Developed the medication, Maralixibat, currently in phase 3 clinical trials for PFIC

https://www.pfic.org/clinical-trials-studies/

Albireo Pharma

Based in Boston, MA

Developed the medication, Odevixibat, currently in phase 3 clinical trials for PFIC

https://www.pfic.org/clinical-trials-studies/

Partnered Business

Miguel's Pizza

Miguel's Pizza restaurant first began in 1984 with the renovation of this historic 1940's store, serving good Italian style food in a friendly atmosphere. Centrally located in a scenic location across the street from Natural Bridge State park in the Red River Gorge area of Eastern Kentucky. It has become the "Gorge visitor hot spot"

https://www.facebook.com/MiguelsPizza

Red River Rockhouse

An eclectic American cafe in Wolfe County, Kentucky. Serving locally sourced foods.

https://www.facebook.com/redriverrockhouse/

Red Oaks

Based in KY

Supports PFIC with their Climbing for a Cure Program

https://www.redoaksforestschool.org/climbing-for-a-cure

Supporting Business

Sea & Stone

Hand printed clothing

https://www.seaandstoneclothing.com/

JMD Embroidery

Based in Canada

Provides personalized care packages for patients via the PFIC Pals and Care Package Programs

https://www.pfic.org/product-category/bears/

https://jmdembroidery.com/

Skybridge Station

Your one-stop shop in the Red River Gorge! 12 LOCAL beers on tap, gourmet hot dogs, locally sourced hamburgers, quesadillas, lodging, tourist info, and the home of KRAG!

https://www.facebook.com/SkyBridgeStation

Daniel Boone Coffee Shop

Fair trade, organic, regionally roasted coffee. We offer the best lattes in the gorge, fresh baked goods and much more! Also camp supplies and souvenirs

https://www.facebook.com/danielboonecoffeeshop

Hop's Beer Garden & Restaurant

Beer Garden & Outdoor Dining

https://www.facebook.com/hopsatrrg

Welcome Home Brewery

Welcome Home Brewery, is a cozy, homey tap room and brewery in Parker, CO. We make all our beer on site, and offer a selection of rotating seasonal beers and flagship styles.

https://www.facebook.com/WelcomeHomeBrewery

Raffle Donors

Positive Attraction Soaps

Based in KY

Provides custom hand made care packages for caregivers and patients

https://www.positiveattractionsoaps.com/gifts

Wild Asteria

Based in KY

Provides custom hand made jewelry

https://www.wildasteria.com/

Lila Callie Photography

Based in KY

1 % of all proceeds goes to PFIC

https://www.lilacalliephotography.com/

Shop Dove & Finn

At Shop Dove and Finn, we create handmade, unique, and affordable clay jewelry and accessories. Shop with us!

Located in the Red River Gorge, Kentucky

https://www.facebook.com/shopdoveandfinn

Dreaming Creek Brewery

A craft brewery located in the heart of Daniel Boone's frontier.

https://www.facebook.com/dreamingcreekbrewery

Earth Shop

Share your love of the gorge with the Red River Gorge Earth Shop, celebrating the nature and beauty of eastern Kentucky with local-made souvenirs and goods! Located in The Gorge Underground

https://www.facebook.com/RRGEarthshop

Revival Ridge Farm

Small scale, diverse vegetable and flower farm located in the heart of Red River Gorge. Intentionally grown with love and care, for people and planet.

https://www.facebook.com/revivalridgefarmky

West Sixth Brewing

A craft brewery & taproom located in a 140 year old bakery. West Sixth cans & distributes our award-winning beers through Kentucky and into Cincinnati, OH

https://www.facebook.com/westsixthbrewing

Tiffany Nardico Photography

Tiffany Nardico is a local photographer capturing adventure around Red River Gorge, Kentucky.

https://www.facebook.com/eyeofthered

Other Grants Received

Everylife Foundation

Dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures.

https://everylifefoundation.org/

Global Genes

Empower patients, build communities & drive forward momentum for rare disease globally.

https://globalgenes.org/

Professional Affiliations

Financial Statements

2019 IRS Filings