Patient/Provider Outreach Program

PFIC Provider Directory & Outreach Materials


As a patient led organization, we understand the value of having educational resources and a point of connection upon diagnosis. Our resources were developed with the support of our Medical Advisory Board, and have been given the NASPGHAN Excellence in Education Award. We have translated these materials into 19 languages, and will continue to translate on demand as needed.

To view the materials included in the Patient & Provider Outreach packet, please click the button below. To request a copy of the materials to be sent to your hospital, please fill out the form below. Filling out the form below will also add your hospital to our hospital outreach initiative. View the full Directory Here.