Patient/Provider Outreach Program

PFIC Patient & Provider Outreach & Education Materials

Clinicians and healthcare providers are some of the best allies we have in our efforts to educate and connect with PFIC patients. As a patient led organization, we understand the value of having educational resources and a point of connection upon diagnosis. These resources were developed with the support of our Medical Advisory Board, and have been given the NASPGHAN Excellence in Education Award.

Materials in this packet are available in over 17 different languages. 
Download the packet in your language below.

Our vision is a future where newly diagnosed PFIC patients have access to educational and support resources as soon as they start their rare disease journey. Our hospital and provider outreach initiative is an integral part of achieving this goal.

If you are a healthcare provider or clinician and would like to receive free educational materials for your patients, please fill out the form below:

If you are a patient and would like to connect your healthcare provider with resources for patients, please fill out the form below:

Digital Outreach Packets Available for Download

If you would like to request materials in a new language, please contact us.
The educational brochure is available in additional languages here.