Events

  • 2024 PFIC Awareness Day

    Every year on October 5th, we recognize, share, and support the PFIC community in hopes for a better future for those we love. Visit our PFIC Awareness Day page to […]

  • Kids Club- Official Relaunch Zoom Call

    We are so excited to announce the official launch of the PFIC Network’s Kids Club, a gathering space for teens and tweens living with PFIC. What is Kids Club? Kids […]

  • PFIC IMPACT October Focus Group Meeting

    Join us for our next Focus Group in October! Join our community of patients, parents, clinicians, and researchers on Tuesday, October 22nd at 6pm EST on Zoom for a conversation […]

  • PFIC Kids Club Meeting-November 2024

    Are you a teen or tween with PFIC or BRIC? Join us on November 2nd for our next Kids Club call! Register today! What is Kids Club? Kids Club is […]

  • December IMPACT Focus Group

    Join us for our next Focus Group in December! Join our community of patients, parents, clinicians, and researchers on Wednesday, December 18th at 6pm EST on Zoom for a conversation […]

  • February IMPACT Focus Group

    Join us for our next Focus Group in February! Join our community of patients, parents, clinicians, and researchers on Thursday, February 20th at 6pm EST on Zoom for a conversation […]

  • Rare Disease Day

    Rare Disease Day is the global movement for rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. […]

  • April IMPACT Focus Group

    Join us for our next Focus Group in April! Join our community of patients, parents, clinicians, and researchers on Tuesday, April 22nd at 6pm EST on Zoom for our final […]

  • PFIC Germany Zoom Meetup

    We would like to share a special invitation from Nikolina in Germany, a member of the International Alliance: ?PFIC Germany is calling! Are you a PFIC patient or a caregiver […]

  • 2025 Cholestatic Liver Disease Summit

    The 2025 PFIC Family & Scientific Conference will be part of the Inaugural Cholestatic Liver Disease Summit! In partnership with Alagille Syndrome Alliance (ALGSA) and Biliary Atresia Research & Education (BARE), we […]

  • PFIC International Alliance Meeting 2025 (Session 1)

    PFIC International Alliance Annual Virtual Meeting  Saturday, July 5, 2025 Join us for a global forum of collaboration, strategy, and community as the PFIC International Alliance brings together organizations and […]

  • PFIC International Alliance Meeting 2025 (Session 2)

    PFIC International Alliance Annual Virtual Meeting  Saturday, July 5, 2025 Join us for a global forum of collaboration, strategy, and community as the PFIC International Alliance brings together organizations and […]