Events

Rare Disease Day

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Rare disease day brings people with all rare diseases together […]

Recurring

International Alliance Meetings

Formerly known as the Global Advisory Council.  We invite you to join us at the International Alliance meeting.  This is a space for addressing PFIC resource needs as well as […]

2022 Scientific Conference

Pittsburgh, PA 1111 Airport Boulevard, Pittsburgh, Pennsylvania, United States, 15231, Pittsburgh, PA, United States

The PFIC Network will be hosting a scientific meeting for researchers, patients, providers and industry partners on April 29-30 in Pittsburg, Pennsylvania. This will be a hybrid meeting with opportunities […]

Kids Club Community Call (Moved from the 21st)

Join a community call for the kids! This is a time for PFIC kids to get together and talk about anything and everything, play games, and have fun in the […]

Recurring

International Alliance Meetings

Formerly known as the Global Advisory Council.  We invite you to join us at the International Alliance meeting.  This is a space for addressing PFIC resource needs as well as […]

Recurring

Project REACH – Pakistan

Project REACH (Research, Education, Advocacy, Collaboration, and Hope), an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. This project consists […]

Recurring

Project REACH – India

Project REACH (Research, Education, Advocacy, Collaboration, and Hope), an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. This project consists […]

Recurring

Project REACH – Pakistan

Project REACH (Research, Education, Advocacy, Collaboration, and Hope), an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. This project consists […]

Mental Health Support Session

What the support group is about - The group offers a safe and welcoming space in which parents and caregivers of PFIC patients can connect with one another, share their experiences, […]

Recurring

Project REACH – India

Project REACH (Research, Education, Advocacy, Collaboration, and Hope), an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. This project consists […]

Recurring

Project REACH – Pakistan

Project REACH (Research, Education, Advocacy, Collaboration, and Hope), an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. This project consists […]

Grandparents & Non-Caregiver Support Group

Most of our programs focus on supporting PFIC patients and their caregivers. The impact of PFIC spreads far beyond this group, though. If you are a non-caregiving relative or close […]