Events

December IMPACT Focus Group

Join us for our next Focus Group in December! Join our community of patients, parents, clinicians, and researchers on Wednesday, December 18th at 6pm EST on Zoom for a conversation […]

February IMPACT Focus Group

Join us for our next Focus Group in February! Join our community of patients, parents, clinicians, and researchers on Thursday, February 20th at 6pm EST on Zoom for a conversation […]

Rare Disease Day

Rare Disease Day is the global movement for rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. […]

April IMPACT Focus Group

Join us for our next Focus Group in April! Join our community of patients, parents, clinicians, and researchers on Tuesday, April 22nd at 6pm EST on Zoom for our final […]

PFIC Germany Zoom Meetup

We would like to share a special invitation from Nikolina in Germany, a member of the International Alliance: ?PFIC Germany is calling! Are you a PFIC patient or a caregiver […]