PFIC Network nominated for Prix Galien Patient First Award

🎉 We’ve been nominated! PFIC Network has been nominated for the inaugural Prix Galien Patient First Award for our initiative IMPACT (Identifying research targets by Merging Patient And Clinician Treatment information).

This award, presented in honor of Michael J. Fox, recognizes initiatives embodying the principle “No decision for me without me” through patient-centered research, care, and advocacy that puts lived experience at the center.

Being named among this year’s nominees is a huge honor and a reflection of the work our whole community of people living with PFIC, their families, clinicians and researchers have put into making sure the PFIC voice shapes PFIC research.

IMPACT was a two-year project funded by a Eugene Washington Engagement Award (EASO-30455) from the Patient-Centered Outcomes Research Institute.

Winners will be announced October 29 at the Galien Patient Summit in New York City. 🤞

Learn more about IMPACT and our ongoing work to build a PFIC research consortium by visiting https://impactroadmap.pfic.org/