Rigena’s Story

I started to have symptoms of illness PFIC2 since l was a baby. There was itchiness, insomnia and also other symptoms with the passing of the years. My doctors in Albania could not find a diagnosis.

When l was 8 years old l went to Italy. The doctors there did not give me the exact diagnosis and cure. They told me l had PFIC3. The moment l received my diagnosis and cure and diet, l felt that l wanted so much to sleep for hours. l thought that finally my itchiness will go and l will be able to sleep.

Now I have a diagnosis, a cure and a diet which l took in April 2023, when l was 24 years old. However, I have struggled to live in a calm environment with healthy people. This has made it difficult for my condition to stabilize. I want so much to live a healthy life. I want the families, friends and people around us to know more about PFIC, because living with symptoms of PFIC can be so hard and exhausting, let alone being able to build a healthy and happy life.

Thank you very much – Rigena🥰