Rare Disease Day
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Rare disease day brings people with all rare diseases together […]
Community Advisory Council Meeting
OnlineA group of volunteers (like you!) who are willing to stay up-to-date with the goals of the PFIC Network and provide input to what is going on with the organization. […]
Board of Directors Meeting
OnlineThe Board of Directors governs the organization’s strategic and organizational management and is committed to furthering the PFIC Network’s mission. It consists of 3-11 volunteer members who meet monthly. Members […]
Kids Club
OnlineJoin a community call for the kids! This is a time for PFIC kids to get together and talk about anything and everything, play games, and have fun in the […]
Community Calls
OnlinePFIC Network seeks to provide a place for our patient and caregiver community to chat and support each other. We will host a monthly zoom chat rooms each with a […]
Board of Directors Meeting
OnlineThe Board of Directors governs the organization’s strategic and organizational management and is committed to furthering the PFIC Network’s mission. It consists of 3-11 volunteer members who meet monthly. Members […]
Community Advisory Council Meeting
OnlineA group of volunteers (like you!) who are willing to stay up-to-date with the goals of the PFIC Network and provide input to what is going on with the organization. […]
International Alliance Meetings
Formerly known as the Global Advisory Council. We invite you to join us at the International Alliance meeting. This is a space for addressing PFIC resource needs as well as […]
Kids Club
OnlineJoin a community call for the kids! This is a time for PFIC kids to get together and talk about anything and everything, play games, and have fun in the […]
Community Calls
OnlinePFIC Network seeks to provide a place for our patient and caregiver community to chat and support each other. We will host a monthly zoom chat rooms each with a […]
2022 Scientific Conference
Pittsburgh, PA 1111 Airport Boulevard, Pittsburgh, Pennsylvania, United States, 15231, Pittsburgh, PAThe PFIC Network will be hosting a scientific meeting for researchers, patients, providers and industry partners on April 29-30 in Pittsburg, Pennsylvania. This will be a hybrid meeting with opportunities […]
Board of Directors Meeting
OnlineThe Board of Directors governs the organization’s strategic and organizational management and is committed to furthering the PFIC Network’s mission. It consists of 3-11 volunteer members who meet monthly. Members […]