Project IMPACT June Focus Group Meeting
Register for the June Focus Group now! Join our community of patients, parents, clinicians, and researchers on June 20th on Zoom for a conversation about research! Why? We will be brainstorming how a specific type of research called Comparative Effectiveness Research (CER) could help address important questions like, “Which treatment is the best choice […]
International Alliance Meeting #1 (July 2024)
Join us July 8th for a meeting of the PFIC Network International Alliance! The International Alliance seeks to provide an international identity for PFIC organizations and the global PFIC community as a whole. It is a space dedicated to addressing resource needs, as well as advocacy and policy issues specific to each participating country. All […]
International Alliance Meeting #2 (July 2024)
Join us July 8th for a meeting of the PFIC Network International Alliance! The International Alliance seeks to provide an international identity for PFIC organizations and the global PFIC community as a whole. It is a space dedicated to addressing resource needs, as well as advocacy and policy issues specific to each participating country. […]
Northeast Ohio Liver Alliance Roundtable Webinar
Our Executive Director, Emily Ventura, will be a panelist at an upcoming free webinar focusing on PFIC and Wilson's Disease hosted by the Northeast Ohio Liver Alliance. Webinar participants will have the chance to learn from two of the nation’s foremost expert physicians in these two highly rare liver diseases. Hear a conversation between providers […]
Project IMPACT August Focus Group Meeting
Register for the August Focus Group now! Join our community of patients, parents, clinicians, and researchers on August 20th on Zoom for a conversation about research! Why? We will be brainstorming how a specific type of research called Comparative Effectiveness Research (CER) could help address important questions like, “Which treatment is the best choice […]