Rare Disease Day is the global movement for rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. Rare Disease Day is observed every year on 28 February (or 29 in leap years)—the rarest day of the year. It was created in 2008 […]

Join us for our next Focus Group in April! Join our community of patients, parents, clinicians, and researchers on Tuesday, April 22nd at 6pm EST on Zoom for our final IMPACT Focus Group! You do not need to have attended a previous IMPACT Focus Group to join us. For more information about Project IMPACT, please […]

We would like to share a special invitation from Nikolina in Germany, a member of the International Alliance: ?PFIC Germany is calling! Are you a PFIC patient or a caregiver living in Germany? We would love to get in touch with you! We are organizing a Zoom meeting for PFIC families in Germany to share […]

The 2025 PFIC Family & Scientific Conference will be part of the Inaugural Cholestatic Liver Disease Summit! In partnership with Alagille Syndrome Alliance (ALGSA) and Biliary Atresia Research & Education (BARE), we will be gathering the wider cholestatic liver disease community together in one place. This unique event will foster collaboration and learning between patients and families, […]

PFIC International Alliance Annual Virtual Meeting  Saturday, July 5, 2025 Join us for a global forum of collaboration, strategy, and community as the PFIC International Alliance brings together organizations and advocates from around the world. Two different session times are offered to accomodate as many time zones as possible: 6 AM EST  and 3 PM […]

PFIC International Alliance Annual Virtual Meeting  Saturday, July 5, 2025 Join us for a global forum of collaboration, strategy, and community as the PFIC International Alliance brings together organizations and advocates from around the world. Two different session times are offered to accomodate as many time zones as possible: 6 AM EST  and 3 PM […]

SAVE THE DATE! September 1, 2025 The last two years have been so much fun that we are back again for our 3rd Annual Charity  Party + Disc Golf Tournament at Redpoint BBQ in the beautiful Red River Gorge of Kentucky. Join us on Monday September 1, 2025 (Labor Day) for a day of disc […]

We will be attending The National Liver Gathering in Pittsburgh, PA. We hope to see you there!

Every year we recognize, share, and support the PFIC community in hopes for a better future for those we love. We use this day to raise awareness and funds to support the PFIC Network mission! To find out more, please visit our PFIC Awareness Day website.

The PFIC Network team will be fundraising at Climb Time Oakley in Cincinnati! 🎃 HALLOWEEN PARTY + SHOE DEMO + FUNDRAISER NIGHT! 👻 Oct 23 | 5–8 PM | Climb Time Oakley    Cincinnati, Ohio Join us for a spooktacular evening of climbing, costumes, and community fun! 🧗‍♀️✨ 👟 So iLL Climbing Shoe Demo — […]

Come see us at our booth at The Liver Meeting 2025 in Washington DC! The Liver Meeting is the annual meeting of the American Association for the Study of Liver Diseases (AASLD) and is one of the largest hepatology conferences in the country. We are honored to represent the PFIC community at this event.   […]