2024 PFIC Labor Day Party and Disc Golf Tournament
Join us Monday, September 2nd (Labor Day) for the official kickoff event of our PFIC Awareness Day fundraising campaign! This family-friendly event will have disc golf, corn hole and more! Hosted by Redpoint BBQ in Campton, KY in the beautiful Red River Gorge area. Check out our event website for more info!
PFIC Awareness Month
PFIC Awareness Day is October 5th, but we know this disease deserves more than a day. So here at PFIC Network, the entire month of October will be PFIC Awareness Month. All month long we will be raising awareness about PFIC and raising funds for PFIC research and the support services you have come to […]
2024 PFIC Awareness Day
Every year on October 5th, we recognize, share, and support the PFIC community in hopes for a better future for those we love. Visit our PFIC Awareness Day page to learn more about how you can get involved!
Kids Club- Official Relaunch Zoom Call
We are so excited to announce the official launch of the PFIC Network’s Kids Club, a gathering space for teens and tweens living with PFIC. What is Kids Club? Kids Club is a virtual gathering of teens and tweens that will take place via WhatsApp and Zoom. WhatsApp is a free messaging app that allows […]
PFIC IMPACT October Focus Group Meeting
Join us for our next Focus Group in October! Join our community of patients, parents, clinicians, and researchers on Tuesday, October 22nd at 6pm EST on Zoom for a conversation about PFIC research priorities! You do not need to have attended a previous IMPACT Focus Group to join us. For more information about Project IMPACT, […]