FDA Listening Session
An FDA Listening Session is an opportunity for those who experience a disease (such as PFIC) as a patient of caregiver to speak to the FDA. This allows the FDA the opportunity to understand the desperate need for further treatments to be developed. Listening sessions are used as a resource for these regulators to engage […]
Patient & Parent Advisory Board
Monthly meetings for our patient and caregiver community to share feedback, resources and present new ideas to improve the quality of life of the PFIC Community.
Global Advisory Board
Coordinated meetings from Europe to Australia to accommodate the PFIC population across the Globe. Global Advocates have the unique abilities to share needs that are specific to their own countries. Together, we hope that we can create solutions to fit all resource gaps.
Community Call – June
PFIC Network seeks to provide a place for our patient and caregiver community to chat and support each other. Beginning in April, we will host a monthly zoom chat rooms each with a theme that is of interest to members of our community. Please join us as we support each other through the devastations and […]
EASL International Liver Congress 2021
We will be attending the virtual event offered by EASL. Patients and affiliates are encouraged to join to learn more! Details taken from website: The International Liver Congress™ 2021, our flagship congress, is delivered to you on our online learning platform, EASL Campus. ILC 2021 is all about beating liver disease together. We will tackle this challenge from multiple […]