Success! Thanks to the Genetic Alliance UK for advocating for one family with PFIC Type 4, and the strong...
by Emily Ventura, Executive Director, PFIC Network Last week, I was invited to host a PFIC booth at the...
A natural advocate: Sharon lives in Canada with her 4 year old daughter who has PFIC 1 who had...
As the mother of a child with a rare disease I’ve always known that advocacy is important. We’ve been...
In the brief time that we have been connected, Julia got to know our small pfic community. Even though...
