Sophie Bourton, mother of Eva Wren, has been a strong advocate for the PFIC Community over the last 2...
“Alone we are strong… together we are stronger.” – Unknown Event Snapshot This May, PFIC International Alliance members had...
This rare disease day I find myself humbled. We were celebrating the milestone of 2 years hospital free when...
This July, PFIC Network was honored to receive a Global Genes Health Equity in RARE Patient Impact grant to...
Success! Thanks to the Genetic Alliance UK for advocating for one family with PFIC Type 4, and the strong...