Written by: Lindsey GramOct 27, 2023 “The disease is so rare, so complex, and so unique, that if people...
Sophie Bourton, mother of Eva Wren, has been a strong advocate for the PFIC Community over the last 2...
“Alone we are strong… together we are stronger.” – Unknown Event Snapshot This May, PFIC International Alliance members had...
This rare disease day I find myself humbled. We were celebrating the milestone of 2 years hospital free when...
In July 2022, PFIC Network was honored to receive a Global Genes Health Equity in RARE Patient Impact grant...
