by Emily Ventura, Executive Director, PFIC Network Last week, I was invited to host a PFIC booth at the...
A natural advocate: Sharon lives in Canada with her 4 year old daughter who has PFIC 1 who had...
As the mother of a child with a rare disease I’ve always known that advocacy is important. We’ve been...
In the brief time that we have been connected, Julia got to know our small pfic community. Even though...
The writing below is a conversation I had with the mother that started the PFIC Italia Network. The foundation...