Join us for our next Focus Group in December! Join our community of patients, parents, clinicians, and researchers on Wednesday, December 18th at 6pm EST on Zoom for a conversation […]

Join us for our next Focus Group in February! Join our community of patients, parents, clinicians, and researchers on Thursday, February 20th at 6pm EST on Zoom for a conversation […]

Rare Disease Day is the global movement for rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. […]

Join us for our next Focus Group in April! Join our community of patients, parents, clinicians, and researchers on Tuesday, April 22nd at 6pm EST on Zoom for our final […]

We would like to share a special invitation from Nikolina in Germany, a member of the International Alliance: ?PFIC Germany is calling! Are you a PFIC patient or a caregiver […]

The 2025 PFIC Family & Scientific Conference will be part of the Inaugural Cholestatic Liver Disease Summit! In partnership with Alagille Syndrome Alliance (ALGSA) and Biliary Atresia Research & Education (BARE), we […]

PFIC International Alliance Annual Virtual Meeting  Saturday, July 5, 2025 Join us for a global forum of collaboration, strategy, and community as the PFIC International Alliance brings together organizations and […]

PFIC International Alliance Annual Virtual Meeting  Saturday, July 5, 2025 Join us for a global forum of collaboration, strategy, and community as the PFIC International Alliance brings together organizations and […]

SAVE THE DATE! September 1, 2025 The last two years have been so much fun that we are back again for our 3rd Annual Charity  Party + Disc Golf Tournament […]

We will be attending The National Liver Gathering in Pittsburgh, PA. We hope to see you there!

Every year we recognize, share, and support the PFIC community in hopes for a better future for those we love. We use this day to raise awareness and funds to […]

The PFIC Network team will be fundraising at Climb Time Oakley in Cincinnati! 🎃 HALLOWEEN PARTY + SHOE DEMO + FUNDRAISER NIGHT! 👻 Oct 23 | 5–8 PM | Climb […]