Years after diagnosis, Kentucky girl with rare disorder is meeting kids like her for first time

Every story we have to tell brings us one step closer to finding more treatment options for PFIC. Whether we are raising disease awareness, advocating for our families, inspiring hope, or coming together at an event, our families are working tirelessly to make ourselves known. What story would you like to tell?

How rare disease organization & advocacy networks can work as a team to bring patient communities together.

PFIC Network Family conference.