Fundraise With Us!
Together, we can fight for a cure.
Why Fundraise?
PFIC Network is a charitable organization that relies on grants, donors, and grassroots fundraisers like you. Your support powers our mission—to support families affected by PFIC and to drive research toward a cure.
By fundraising with us, you’re helping to:
- Support PFIC patients and families
- Raise awareness in your community
- Fund research for better treatments and a cure
Every effort counts. Together, we can make a difference in the lives of those living with PFIC.
Our Impact
PFIC Network is dedicated to supporting PFIC patients and families and driving progress against this rare disease. By uniting patients, caregivers, clinicians, and researchers, we build the collective strength needed to push meaningful research forward. Hosting a fundraiser is a simple but powerful way to join this mission. Together, we hope to move closer to a future where PFIC is well understood, quickly diagnosed, and curable.
Research
Since 2021, we have awarded 3 grants that directly fund PFIC research.
- 2021- Dr. Paula Hertel
- 2024-Dr. Pasqual Piccolo
- 2025-Dr. Laura Bull & Dr. Richard Thompson
Education
Our educational materials are created to give new families an understanding of the rare disease they are diagnosed with. These include our patient information brochure translated into 19 different languages, provider outreach materials, and a library of educational webinars.
Support
$25,738 distributed through our global financial assistance program.
$68,000 distributed in travel assistance
56 care packages sent
Ways You Can Help
Donate
- Donate Online
- Contribute through your Donor-Advised Fund
- Set up a recurring donation
- Fundraise via Facebook
Start a Fundraiser
Whether you’re hosting an event or running an online campaign, you can raise awareness and funds in your own way. Here are some popular ideas to get started:
- Bake Sale or Lemonade Stand
- Friendship Bracelet Sale
- Spirit Night at a Local Restaurant
- Silent Auction or Raffle
- Dinner Party or Themed Event
- Garage/Yard Sale
Have your own idea? We’d love to hear it!
Get the Tools You Need
Ready to make a difference?
Our fundraising toolkits give you everything you need to start strong. Each toolkit includes:
- Step-by-step planning guides
- Promotional materials
- Fundraising tips
- Info on how to request swag for your event
Need more help?
Contact us — we’re happy to support you!
You Make This Possible
Every dollar raised and every event held brings us one step closer to a cure.
Thank you for being part of this fight.
