Week of Events
Sunday, August 13, 2023
No events on this day.
Monday, August 14, 2023
No events on this day.
Tuesday, August 15, 2023
No events on this day.
Wednesday, August 16, 2023
No events on this day.
Thursday, August 17, 2023
No events on this day.
Friday, August 18, 2023
No events on this day.
Saturday, August 19, 2023
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August 19, 2023 -Parent and Caregiver Support Group
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August 19, 2023 -Patient Support Group
Parent and Caregiver Support Group
What the support group is about – The group offers a safe and welcoming space in which parents and caregivers of PFIC patients can connect with one another, share their experiences, and offer one another support. Why it’s important – Parenting a child with a rare disease can be exhausting, overwhelming, and isolating. It’s important to have […]
Patient Support Group
What the support group is about – The group offers a safe and welcoming space in which adult PFIC patients can connect with one another, share their experiences, and offer one another support. Why it’s important – Having a rare disease can be exhausting, overwhelming, and isolating. It’s important to have a space in which you feel […]