Week of Events
Sunday, November 6, 2022
No events on this day.
Monday, November 7, 2022
No events on this day.
Tuesday, November 8, 2022
No events on this day.
Wednesday, November 9, 2022
No events on this day.
Thursday, November 10, 2022
No events on this day.
Friday, November 11, 2022
No events on this day.
Saturday, November 12, 2022
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November 12, 2022 -Patient Support Group Session
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November 12, 2022 -Parent & Caregiver Support Group
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November 12, 2022 -Grandparents & Non-Caregiver Support Group
Patient Support Group Session
What the support group is about – The group offers a safe and welcoming space in which PFIC patients can connect with one another, share their experiences, and offer one another support. Why it’s important – Having a rare disease can be exhausting, overwhelming, and isolating. It’s important to have a space in which you feel seen, […]
Parent & Caregiver Support Group
What the support group is about – The group offers a safe and welcoming space in which parents and caregivers of PFIC patients can connect with one another, share their experiences, and offer one another support. Why it’s important – Parenting a child with a rare disease can be exhausting, overwhelming, and isolating. It’s important to have […]
Grandparents & Non-Caregiver Support Group
Most of our programs focus on supporting PFIC patients and their caregivers. The impact of PFIC spreads far beyond this group, though. If you are a non-caregiving relative or close friend of a PFIC patient, you already know this. This support group is for YOU! We’ve created this group with grandparents in mind, but all […]