Events

AASLD The Liver Meeting 2021

The PFIC Network will be registering to attend the AASLD Liver Meeting, 2021. Patients and affiliates are encouraged to sign up to learn more! More details on website: DATE OF EVENT Friday, November 12, 2021 - 8:00 am - Tuesday, November 16, 2021 - 3:00 pm LOCATION Anaheim, CaliforniaUnited States

Global Advisory Board

Coordinated meetings from Europe to Australia to accommodate the PFIC population across the Globe. Global Advocates have the unique abilities to share needs that are specific to their own countries. Together, we hope that we can create solutions to fit all resource gaps.

Kids Club Community Call

Join in on the PFIC Kids Club community call with your PFIC Kid! It is a ton of fun for the kids as they learn they are not alone. The call for December is themed around the holidays! Click the link below to join. https://www.pfic.org/pfic-community-zoom-room/  

Rare Disease Day

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Rare disease day brings people with all rare diseases together in unity to show that just because you have a rare disease, does not mean you are alone.

Recurring

International Alliance Meetings

Formerly known as the Global Advisory Council.  We invite you to join us at the International Alliance meeting.  This is a space for addressing PFIC resource needs as well as advocacy and policy issues in participating countries. Because of time zone differences across the globe we will be having two different meetings for people to […]