Rare Disease Day
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Rare disease day brings people with all rare diseases together in unity to show that just because you have a rare disease, does not mean you are alone.
International Alliance Meetings
Formerly known as the Global Advisory Council. We invite you to join us at the International Alliance meeting. This is a space for addressing PFIC resource needs as well as advocacy and policy issues in participating countries. Because of time zone differences across the globe we will be having two different meetings for people to […]
2022 Scientific Conference
Pittsburgh, PA 1111 Airport Boulevard, Pittsburgh, Pennsylvania, United States, 15231, Pittsburgh, PA, United StatesThe PFIC Network will be hosting a scientific meeting for researchers, patients, providers and industry partners on April 29-30 in Pittsburg, Pennsylvania. This will be a hybrid meeting with opportunities to present research both in person and virtual. Important Dates: Abstract submission deadline: January 21, 2020 Final decision on presentations: January 28, 2020 Submit abstract: […]
Kids Club Community Call (Moved from the 21st)
Join a community call for the kids! This is a time for PFIC kids to get together and talk about anything and everything, play games, and have fun in the PFIC Community.
International Alliance Meetings
Formerly known as the Global Advisory Council. We invite you to join us at the International Alliance meeting. This is a space for addressing PFIC resource needs as well as advocacy and policy issues in participating countries. Because of time zone differences across the globe we will be having two different meetings for people to […]