The diary of a PFIC mom from India
The diary of a PFIC mom from India
She is my second child. After her birth everything was going fine. When she was about 4 months we noticed that she would scratch her ear and it would bleed for hours. Doctors said that it was just dryness. When it happened again and again, we visited our paediatrician to check her pt/inr which was really very high. The doctor thought that she had clotting issues but fate had other horrendous plans for us.
In her 6 months, she started turning yellow and itching increased to another level. The doctor immediately told us of the liver issue and diagnosed her with PFIC.
We have been dealing with ITCHING since then. We have seen worse days and even worser nights. She will itch with everything and anything. If I don’t let her itch she cries so badly. Nothing seems to help the itch. The itch would make her bleed but still she wouldn’t be satiated. She would itch and itch. Ofcourse there are better days when she will itch less and we would just hope for the next day to be better. Hoping for the good days to be here. It breaks your heart to see your child suffer so so very much. Not only it is affecting my daughter but my son my partner, to be honest the entire family. It has completely changed me as a person. The itch has affected my entire family. Hoping for better days.