Events

Global Genes Rare Patient Advocacy Summit

The PFIC Network will be registering for and attending the Global Genes Rare Patient Advocacy Summit. Patients, ambassadors and advocates are encourage to reach out to learn more and join […]

Recurring

Board Of Directors Meeting

Monthly meetings of governance and direction for our organization. These meetings are for members of the Board of Directors, all other attendees are by invite only.

Recurring

Patient & Parent Advisory Board

Monthly meetings for our patient and caregiver community to share feedback, resources and present new ideas to improve the quality of life of the PFIC Community.

Global Advisory Board

Coordinated meetings from Europe to Australia to accommodate the PFIC population across the Globe. Global Advocates have the unique abilities to share needs that are specific to their own countries. […]

Recurring

Board Of Directors Meeting

Monthly meetings of governance and direction for our organization. These meetings are for members of the Board of Directors, all other attendees are by invite only.

Recurring

Patient & Parent Advisory Board

Monthly meetings for our patient and caregiver community to share feedback, resources and present new ideas to improve the quality of life of the PFIC Community.

AASLD The Liver Meeting 2021

The PFIC Network will be registering to attend the AASLD Liver Meeting, 2021. Patients and affiliates are encouraged to sign up to learn more! More details on website: DATE OF […]

Recurring

Patient & Parent Advisory Board

Monthly meetings for our patient and caregiver community to share feedback, resources and present new ideas to improve the quality of life of the PFIC Community.

Global Advisory Board

Coordinated meetings from Europe to Australia to accommodate the PFIC population across the Globe. Global Advocates have the unique abilities to share needs that are specific to their own countries. […]

Recurring

Board Of Directors Meeting

Monthly meetings of governance and direction for our organization. These meetings are for members of the Board of Directors, all other attendees are by invite only.