Progressive Familial Intrahepatic Cholestasis (PFIC)
Make an IMPACT!
PFIC Network was selected for PCORI Engagement Award funding (EASO-30455) for a project titled IMPACT! Through this project, we will prepare the PFIC community for patient-centered outcomes research.
PFIC Support Programs
PFIC Network was founded by PFIC families & providing direct support and disease education to patients is at the heart of our organization. While we are US-based, we support families all over the world. All patients, caregivers, and family members are invited to participate in our programs.
Latest Blog Post
🔬Research Updates from the ChiLDReN Network
Did you know that there are several research networks dedicated to studying PFIC and other…
Upcoming events
PFIC SpotLight
Our Support Programs are developed to support our mission to improve the lives of patients and families affected by PFIC.The PFIC Network is honored to be able to offer programs specifically for patients and caregivers affected by Progressive Familial Intrahepatic Cholestasis, PFIC.
If you or someone you know is affected by PFIC and could benefit from mentorship, a care package or financial support, please check out our peer support programs and find out how we can help!
