PFIC Progressive Familial Intrahepatic Cholestasis-Resource for Pediatric Liver Disease

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PFIC Definition Cards is a website that was built by and for PFIC patients and families.  It was established to provide a resource for those with new diagnoses and for those continuing to search for treatments and solutions to the challenges of PFIC. Our mission is to improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis, PFIC. We support research programs, provide educational materials, match families for peer support, and participate in advocacy opportunities.

Now Enrolling for Study of PFIC liver disease!!!!

The Childhood Liver Disease Research and Education Network (ChiLDREN) (formerly the Cholestatic Liver Disease Consortium = CLiC) is enrolling children and young adults through age 25 years in the largest natural history study ever conducted of PFIC. There are 16 sites in the U.S. and Canada enrolling for this study. Many sites now have travel funds for this year to help pay for travel and housing expenses of families from out of town.  The goals of this study are to better understand the causes, risk factors and clinical outcomes in PFIC. If you are interested in finding out more information about participating in this important study, please phone or email right away one of the ChiLDREN sites (see PDF for contact information). This study is supported by the National Institutes of Health.

The information on this web site is presented for educational purposes only. It is not intended as a substitute for the diagnosis, treatment and advice of a qualified, licensed, medical professional.

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