PFIC in the Media

Spread awareness - Share your story with the world

 
For years, our community has fought with the uncertainty of PFIC with very little voice. Not only are we rare, we are ultra-rare. And being ultra-rare can make one feel very little. But not today. Today, we are going to speak up. Alone we are rare, together we are mighty.
 
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Feature 1 July 23, 2019

Local Child Fights Rare Genetic Disease, Family Working to Spread Awareness

Find more coverage of the brave Trey here in his interview with DelmarvaLife

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Feature 2 July 5, 2019

Child with Rare Genetic Disorder Meets Kids Like her for the First Time