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X-WR-CALNAME:PFIC
X-ORIGINAL-URL:https://www.pfic.org
X-WR-CALDESC:Events for PFIC
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X-PUBLISHED-TTL:PT1H
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TZID:UTC
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DTSTART:20210101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20221112T120000
DTEND;TZID=UTC:20221112T130000
DTSTAMP:20260410T124416
CREATED:20221005T145248Z
LAST-MODIFIED:20221005T145248Z
UID:95072-1668254400-1668258000@www.pfic.org
SUMMARY:Patient Support Group Session
DESCRIPTION:What the support group is about – The group offers a safe and welcoming space in which PFIC patients can connect with one another\, share their experiences\, and offer one another support. \nWhy it’s important – Having a rare disease can be exhausting\, overwhelming\, and isolating. It’s important to have a space in which you feel seen\, heard\, and valued. Our goal is to make this support group into just such a space\, so that participants leave feeling connected\, understood\, and recharged. \nAll patients are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZwsfu-rqTMpGt12zV6huDRpM1XyeZXVNuKa \nHosted by Lisa Jensen. Lisa’s Bio: \nHow are you connected to PFIC?\nMy friend’s daughter has PFIC.\nWhat is your role in the network?\nI facilitate an online support group for families and individuals affected by PFIC.\nWhere are you located?\nOn a farm just outside of Lexington\, KY.\nWhat do you hope to accomplish?\nI hope to help build an active and thriving support group—one in which all members feel safe\, heard\, understood\, and valued. Living with a rare disease or loving someone with a rare disease can be overwhelming and isolating. There is so much empathy\, wisdom\, knowledge\, and experience within the PFIC community\, though. My hope is to create a space in which members can turn toward one another\, draw upon these strengths\, and heal together.\nWhat skills do you bring to the network?\nI care about people\, have a passion for mental health\, and value meaningful connection. In addition to having a Masters Degree in Counseling Psychology\, I have firsthand experience in living with a debilitating chronic illness. I created an online community for my fellow Covid-19 long-haulers\, where I have both witnessed and felt the healing that comes from being part of a group that deeply understands what you are going through.\nWhat would you sing at karaoke night?\nProbably “Landslide\,” since I can actually hit the high notes—at least on a good day!
URL:https://www.pfic.org/event/patient-support-group-session-2/
LOCATION:IL
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221112T133000
DTEND;TZID=UTC:20221112T143000
DTSTAMP:20260410T124416
CREATED:20221005T145026Z
LAST-MODIFIED:20221005T145026Z
UID:95068-1668259800-1668263400@www.pfic.org
SUMMARY:Parent & Caregiver Support Group
DESCRIPTION:What the support group is about – The group offers a safe and welcoming space in which parents and caregivers of PFIC patients can connect with one another\, share their experiences\, and offer one another support. \nWhy it’s important – Parenting a child with a rare disease can be exhausting\, overwhelming\, and isolating. It’s important to have a space in which you feel seen\, heard\, and valued. Our goal is to make this support group into just such a space\, so that participants leave feeling connected\, understood\, and recharged. \nAll parents and caregivers are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZYof-qppzojG9Yx8Jz7rQmgcWGwjZY6KA9A  \nHosted by Lisa Jensen. Lisa’s Bio: \nHow are you connected to PFIC?\nMy friend’s daughter has PFIC.\nWhat is your role in the network?\nI facilitate an online support group for families and individuals affected by PFIC.\nWhere are you located?\nOn a farm just outside of Lexington\, KY.\nWhat do you hope to accomplish?\nI hope to help build an active and thriving support group—one in which all members feel safe\, heard\, understood\, and valued. Living with a rare disease or loving someone with a rare disease can be overwhelming and isolating. There is so much empathy\, wisdom\, knowledge\, and experience within the PFIC community\, though. My hope is to create a space in which members can turn toward one another\, draw upon these strengths\, and heal together.\nWhat skills do you bring to the network?\nI care about people\, have a passion for mental health\, and value meaningful connection. In addition to having a Masters Degree in Counseling Psychology\, I have firsthand experience in living with a debilitating chronic illness. I created an online community for my fellow Covid-19 long-haulers\, where I have both witnessed and felt the healing that comes from being part of a group that deeply understands what you are going through.\nWhat would you sing at karaoke night?\nProbably “Landslide\,” since I can actually hit the high notes—at least on a good day!
URL:https://www.pfic.org/event/parent-caregiver-support-group/
LOCATION:IL
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221112T150000
DTEND;TZID=UTC:20221112T160000
DTSTAMP:20260410T124416
CREATED:20220928T135056Z
LAST-MODIFIED:20220928T135056Z
UID:94925-1668265200-1668268800@www.pfic.org
SUMMARY:Grandparents & Non-Caregiver Support Group
DESCRIPTION:Most of our programs focus on supporting PFIC patients and their caregivers. The impact of PFIC spreads far beyond this group\, though. If you are a non-caregiving relative or close friend of a PFIC patient\, you already know this. This support group is for YOU! We’ve created this group with grandparents in mind\, but all non-caregiving family members and friends are welcome. \nRegister for the session here: https://us06web.zoom.us/meeting/register/tZAtcuytqjotG9S7CETiXzb2BGqaMOZCer6n
URL:https://www.pfic.org/event/grandparents-non-caregiver-support-group-2/
LOCATION:IL
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